My leptomeningeal journey - HER2 Support Group Forums

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My leptomeningeal journey

07-19-2016, 10:12 PM	#1
Jedrik Senior Member Join Date: Dec 2015 Posts: 36	Re: My leptomeningeal journey This is great news. I am so pleased for you and your family. And like freakzilla said: All that research you shared gave me perspective and hope. Thanks. __________________ Dx 9/17/2015, IDC/Paget's, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ at age 57 Surgery 10/6/2015 Lymph node removal: Sentinel Chemotherapy start 10/19/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy start 10/19/2015 Herceptin (trastuzumab), Perjeta (pertuzumab) Surgery 02/23/2016 MX Left, PMX Right

07-20-2016, 09:21 AM	#2
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: My leptomeningeal journey You are most welcome. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.