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Old 06-07-2016, 11:38 AM   #1
v-ness
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Join Date: Nov 2009
Location: western ma
Posts: 280
Re: Karen has moved on

this news is a punch in the stomach. i actually returned here today to ask her advice about something because last summer we had PM'd each other after my boyfriend was diagnosed stage 4. she was so kind and wise and caring and generous with her knowledge. i couldn't believe all that she'd been through and i am so sorry that she is gone. she went on her own terms, i guess, which is not surprising. i am so sorry, andi, that you lost a dear friend. i felt like she was my only friend here. tears for karen. - valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 06-07-2016, 12:12 PM   #2
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: Karen has moved on

You're very thoughtful, Valerie. Karen has spoken of you to me. Her loss to us all is great and I will never ever forget her.

She was in her 6th yr of fighting and it was hard. I know everyone here understands what hard is. There is just nothing like it. All these yrs after being on chemo, I still suffer from of the nasty side effects and vividly recall in amazement how I got through it.

We do what we must. I saw it as a process. I would struggle through it somehow, sometimes literally one hour at a time, then I got back to one day at a time. I saw myself far, far into the future.

I imagined myself at my 1 yr old granddaughter's Bat Mitzvah (which occurs at age 13). I would be there! I vowed it and envisioned it in detail. I was standing at a round table surrounded by family and friends. I looked radiant. Aglow. Music was playing and we were all clapping, waiting for the Bat Mitzvah girl to come on to the dance floor. Make her entrance. I felt such love and pride and joy!

Well, I lived to see that day!! I lived my dream. Now I have new dreams. That granddaughter is now finishing her 1st yr in college. She is 19.

I was 50 at orig dx. I am now 71.

I wish success to all my Sisters.

Valerie, I am here for you! Absolutely. Any time. My email is within my info. Please feel free to email me any time. We can chat.

Put HER2 SISTER in the subject line so I will not delete the email. I will respond. It is my honor to help in any way I can.

That goes for anyone on this board. I am here for you. I want to be. It brings me a sense of worth, using all the knowledge I've accrued through this thing called cancer.

Put my name in the search and see my articles through the yrs. I bet some will be helpful, inspirational, maybe even interesting.

I do send love to you all. You are always in my thoughts. In past yrs, when Joe was our webmaster, there were times the site would go down. As a regular, one who checked in at least once a day, every day, I would be aghast. I had no access to my support group !!!!!!!!!!

Then finally, the site would get back on line and so many others were out there, hanging on, waiting just like me.

We're here to support one another. I most definitely am! Any time!

XOXOXO, Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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