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Re: Calling all stage iv sisters
Just saw this posting through an old friend's FB (can't remember if I'd invited this friend of friend's to this forum):
"So my poor city of n b has had a rough week....well I am ready to start turning some frowns upside down....this week I had scans to see where I am at with the cancer...well the results r in....the cancer that was on my bones is inactive....it is causing pain because it is scarring on the bone and will take years to heal....the liver met is GONE....the tumor in my breast is the same size....so what is the plan u may ask?!?! We r going to move forward with the lumpectomy to remove the tumor and will probably get radiation after the lumpectomy...after the lumpectomy I will officially be CANCER FREE!!!! What?!?! YES you are reading correctly and not going crazy...I said it CANCER FREE!!!! Shut the front door people?!?! Are you kidding me!!!!! I am just in complete shock and right now disbelief!!! You have answered my prayers!!! He is not ready for me!!!! Don't get me wrong I still have to deal with cancer for the rest of my life....I have to take a hormone pill everyday and have an intravenous infusion of herceptin every three weeks FOREVER!!! And herceptin is not cheap...$25,000 per infusion!! �� I will b getting scanned every three months for the first year and then every six months after that....then after a year of being free of this crapola I will hopefully get my double mastectomy with reconstruction...OMG!!!! Shut up!!!! I just can't believe it...damn people I am good!!! Hahaha jk!!! I know that I will have a fear of it returning forever and I have to get treated forever but hey my forever is gonna b a lot longer!!!! ��.....you did it!!! You prayed and supported and loved me.....so right now I need to focus on a upcoming surgery...but dang that should b a piece of cake!! I need to write to you as I am just crying...I wouldn't be here without u, my friends, my family and my community, and my boys....u inspired me and gave me strength everyday......I will live each day in the moment...I will b happy and I will give back....I want to touch and inspire and help thousands or millions of people....I am and want to live....I am a mom, a daughter, a friend and hopefully one day again I will get to be a wife....I am blessed....my life I will have a lot of pain because of the scarring on my bones but that is ok bc I am living and breathing and smiling!!! �� I am just so pumped!!! Life is so precious....live for each moment...love the people you surround urself with and fight each battle with grace and dignity!!!! Holy cow....after surgery Mudge will b CANCER FREE....dang skippy I don't know how much stronger you can get!!!! Thank you for you love and support!! I am honored and blessed!!! I love you all!!!! If winning was easy losers would do it.....I told you guys I am NO LOSER!!! ������ #mudgestrong"
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 02-14-2016 at 03:16 PM..
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Hybrid Mode
