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Old 01-10-2015, 11:00 AM   #1
DizzyDo
Senior Member
 
Join Date: Feb 2014
Location: Washington State
Posts: 49
Re: Ugh Brain Mets!

Thanks for all the support! I love the other posts as well about the stereotactic radiation successes. Right now I am hanging in here, my only issue is dealing with the dex. Wow this stuff is something else, hard to describe what this is even like. The rad doc's nurse helped me out a lot this week, adjusting the levels down a bit and checking up on me. So I feel well cared for, now just waiting for the procedure next week and then hopefully the taper off the dex. I have so much energy I think I will go clean the basement today. My attention span is about 15 seconds so that should be interesting.

I'm really curious about what the procedure will be like next week. Lots of people involved, rad doc, neuro doc, techs, a physicist (not sure what exactly he does, I suspect he designs the rads to shoot). I'll will be relieved when it's done and the spots are gone. It's a creepy feeling knowing these little buggers are in my brain.
__________________
2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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Old 01-10-2015, 11:45 PM   #2
Nurse4u2day
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Join Date: Feb 2014
Location: California
Posts: 439
Re: Ugh Brain Mets!

Dizzy do sorry about the brain mets... I hope the gamma knife takes care of this crap. I have no personal experience in relation to stage 4 cancer and I pray I never will.With that said I do have experience with the no sleep and 15se one attention span. The only thing that partially worked for me was 2 mg of Ativan. Even ambien was useless. Weird thing is Ativan at 1mg would wire me out but doc suggested 2 mg at night only and no narcs. Just throwing that out there for you
__________________
]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
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