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Old 04-09-2014, 12:04 PM   #1
Audrey
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Location: Ohio
Posts: 212
Re: 9 year Anniversary

Congrats on your anniversary, Yorkiegirl! I am 13 years out now and don't see my oncologist anymore, I think my visits stopped once I reached 10 years post diagnosis. It's kind of hard to let go of that relationship and reassurance but I know I can always call and schedule an appt. if I have any worrisome symptoms. Celebrate your anniversary--I wish you continued good health
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Audrey

diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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Old 04-09-2014, 04:31 PM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: 9 year Anniversary

Great news, Yorkie! So happy for you!

Let's see, I am 18 yrs from dx. 14 yrs from being "cautiously" declared STABLE.

I still see my onc ev 6 mnths. I go for bld ev 6 mnths. I have graduated to annual Ct scans (chest/abd/pelv) and now -- w/NO contrast.

The availability of Vitamin H came 1 mnth after I recurred (September 28, 1998)! I stayed on H for 10 yrs... despite being STABLE. No studies on pp like me. I was in uncharted waters. And ever grateful!!!

BE WELL!!

Love,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-09-2014, 07:09 PM   #3
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Re: 9 year Anniversary

Congrats on being 9 years out Vicki.

I am 7 1/2 years out - My original onc. discharged me in July 2012, when I finished my 5 years of anti-estrogens (2 1/2 years Tamoxifen, 2 1/2 years Femara. At that time I was almost 6 years out.)

I was given the choice of just seeing my regular GP, or being seen at a new clinic for post cancer survivors at Women's College Hospital in downtown Toronto, about 10 minutes from the hospital where I had my chemo and Herceptin treatments. I would be seen yearly by an oncologist, not sure yet for how many years, but I decided to go with that option. Love my new onc., have my mammograms there now, and she arranged for me to have a colonoscopy (strictly routine) at the same hospital, just to have all my records in one place.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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