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View Poll Results: ER-/PR- HER2 staging poll
I am stage 0 or 1 ER-/PR- HER2+ and originally diagnosed as stage 1 with negative lymph nodes 37 18.69%
I am stage 0 or 1 ER-/PR- HER2+ and originally diagnosed as stage 1 with positive lymph nodes 3 1.52%
I am stage 2 or 3 ER-/PR- HER2+ and originally diagnosed as stage 2 or 3 with negative lymph nodes 28 14.14%
I am stage 2 or 3 ER-/PR- HER2+ and originally diagnosed as stage 2 or 3 with positive lymph nodes 70 35.35%
I am stage 4 ER-/PR- HER2+ and was originally diagnosed as stage 4 27 13.64%
I am now stage 2 or 3 ER-/PR- HER2+ and was originally diagnosed at a lower stage 7 3.54%
I am now stage 4 ER-/PR- HER2+ and was originally diagnosed at a lower stage 27 13.64%
My cancer metastasized less than two years from original diagnosis 14 7.07%
My cancer metastasized two years to four years from original diagnosis 6 3.03%
My cancer metastasized in greater than four years from original diagnosis 7 3.54%
Multiple Choice Poll. Voters: 198. You may not vote on this poll

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Old 11-23-2013, 12:28 AM   #1
conomyself
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Join Date: Sep 2012
Posts: 111
Re: ER-/PR- HER2 staging poll
Hi Astrid, sorry I didn't see the ER-/PR-. I voted, but I am triple positive -- maybe you can remove my vote? I selected the 5th option, diagnosed at stage 4.

Rachael
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7/30/2012 Diagnosed with metastatic breast cancer
8/3/2012 CT scan mets to liver (major!!), lungs, spine, and skin
8/8/2012 Biopsy results: invasive ductal carcinoma
ER+/PR+/HER2+ amplification 4.8 (whatever that means)
8/13/2012 Brain MRI (clear); bone scan verified CT scan
8/14/12 started Taxotere/Carboplatin/Herceptin, 2 rounds (added Neulasta after 9/4 treatment)
9/4/12 CA 15-3: >3000
9/15/12 CA 15-3: 840
9/15/12 started Taxotere/Perjeta/Herceptin, 4 rounds (no Neulasta)
10/29/12 CT scan showed dramatic improvement in all areas - largest liver met 2.5 cm, largest lung met 10 cm
12/17/12 Started Perjeta/Herceptin, 2 rounds
12/17/12 CA 15-3: 17 Yay!!!
1/21/13 CT scan showed improvement - largest liver met 1.9 cm, largest lung met 2 mm
1/29/13 CA 15-3: 12 Started Herceptin only
3/12/13 CA 15-3: still 12 yay!! Back to Perjeta/Herceptin
3/29/13 CT scan more improvement - largest liver met 1.2 cm, some lung mets disappeared!
3/7/14 started Tamoxifen
6/27/13 - 1/2015 CT scan stable
Began a diet of only single ingredient foods and went nearly NED excepts for some tiny lung spots - ask me if you want to know more...
1/2015 - 1/2017 CT scan stable
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Old 12-11-2013, 02:09 PM   #2
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: ER-/PR- HER2 staging poll
Hi. Though I metastasized 2-4 yrs after orig dx -- actually 3 yrs -- I think it's important to add that I did not have benefit of Herceptin in 1995 (H being in clinical trials and not even testing for the HER2 gene was done then).

In August of 1998, I asked to be tested (H still in clinical trials) BUT -- fast tracked by the FDA September 28 of 1998 -- for metastatic bc. I FINALLY LUCKED OUT...

Love and Light,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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