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Old 11-19-2013, 06:21 PM   #1
jacqueline1102
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Join Date: Apr 2012
Posts: 183
Re: New mets for MJ :(

Dear Greg,

I would speak with your wife's oncologist about getting her on Perjeta and the Herceptin. I am kinda curious as to why they took her off the herceptin in the first place. I have had a good run with the perjeta and herceptin for awhile now. I am lucky. The oncologist should advocate for your wife to obtain the perjeta and since she has not been too heavily treated this should not be a problem. Magic mouthwash was prescribed for me during my chemo time. I wish I knew more about peritoneal carcinoma but I don't. Take good care. I know and my husband knows how hard this is.

Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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Old 11-19-2013, 07:10 PM   #2
MJsHusband
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Join Date: Apr 2012
Posts: 87
Re: New mets for MJ :(

Hi Jackie,
He took her off Herceptin after the Her2 mets to her uterus, cervix, fallopian tubes and nearby lymph nodes. It didn't appear to be offering any protection at that point. Perjeta is likely in the near future. Just hoping the Abraxane works on the liver mets soon. Maybe Herceptin will work again in combination with it. Thanks for your comment.

Greg
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08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)

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