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Old 07-16-2013, 04:21 PM   #1
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Brain MRI this morning

Holy Shit! That story is just unbelievable.

I never in a million years expected to hear anything like this.

Honestly what can you do, but laugh. This is seriously crazy stuff.

I don't understand about the Pet Scan. I mentioned that in the last few days, and was wondering why the Pet Scan didn't include the brain. Perhaps it is because of the blood brain barrier, hmmmm . . .

Geez, I hope they put the Plastic Surgeon on it ASAP! I would have never thought about implants interfering with an MRI.

God must have a plan, and maybe he's delaying the scan to give your Tykerb/Herceptin a little longer to work?

I am saying a little prayer for you.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 07-16-2013, 04:35 PM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Brain MRI this morning

WOW, KS -
In all my years of breast cancer support I have never heard of MRI-unfriendly expanders. And know several women who got new boobs via expanders who developed brain mets. Perhaps there is some diferent material in yours?

I think it would be important to list a warning here for that particular kind.

On to your other status. I will pray for you to be on a different procedure suite table ASAP.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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