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Old 05-28-2013, 07:27 PM   #1
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Re: Rembering our amazing Christine ~ web site founder

Thank you StephN for starting this thread.

I was warmly embraced by Christine's enthusiasm when I attended an ASCO meeting in Atlanta with Christine, Joe...I remember that Becky was there too. We handed out the stress relieving brains and Christine had us reach out to all the doctors passing by to remind them of the need to scan for brain mets.

Christine and Joe were warm and welcoming to this relatively newly diagnosed Her2 gal with mets. I felt empowered after hearing Christine's amazing story. I felt even more empowered hearing the results of research that year.

I later had the joy of meeting Christine and Joe for dinner at a restaurant by the sea near Carlsbad. We had a few glasses of wine and lots of laughs. Who could even think of "mets" on a beautiful breezy warm night by the sea? We talked about life, and our love for our children. Oh how she loved her girls.

Yes, we are all more empowered and see the possibilities in the impossible thanks to Christine. How privileged I feel to be able to keep passing it forward.
Love Kim (from CT)
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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Old 05-28-2013, 10:34 PM   #2
StephN
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Location: Misty woods of WA State
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Re: Rembering our amazing Christine ~ web site founder

Joe sent me an article about Christine from Vision Magazine in 2004. I did not find it, but found a link to a very complete article with Christine's story on another breast cancer website.
http://www.youngsurvival.org/breast-...iagnosed-at-40

It is well worth the time to take a look. and tells of the family move from New Jersey to San Diego area. An internet search will bring up several other mentions of Christine.

A sad point in the above story concerns Christine's promise to her dying mother that she would live to 75 and beyond. Christine mentioned this more than once and I am sorry she had to break that promise, but I am sure her mother understands and greeted her with wide open arms.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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