One year of TDM1. NED!

[Nancy L]

I am very happy for you. How many months did it take before they used the word Ned? I have had 11 treatments and it has not been easy. I have a lot of collateral damage issues I am dealing with so I never know exactly what to blame. But I am pretty sure the joint/muscle pain is Katcyla's fault. I have gone to taking a narco first thing in the morning to get going. Have you experienced pain with Katcyla?

[phil]

michka , we are so happy for you, Lorraine too had stents in bile duct, kidney. cancer there so small couldn't be seen on scans, now all gone !
Lorraine cut back on scans to every 3 months last yr. that was 2nd yr of tx, about 6 months ned. since reaching one yr ned this past Nov., 2012, she is on a 4 month schedule. tumor mrkers are checked very regularly. she is still on the extension or maintenance study , for those who have finished expanded access or trials. the scan schedule was negotiated betw. our doc and Genentech , based on good , sustained response. 6 weeks seems much too frequent for 0ne yr ned.