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Old 03-01-2013, 07:02 AM   #1
NEDenise
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Location: Philly Suburbs
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Re: Not sure what to think of the info I got today

Leah,
I have benign lung "things" too. Lots of bronchitis and pneumonia in my past, so no big surprise.

I agree with the SOB and tingling being the possible manifestations of anxiety...you're certainly entitled to as much of that as you want/need! If you have that Ativan...maybe it's worth a try. At least in the short term...to get symptom relief. Works wonders for me sometimes.

Your treatment updates, and the team you've described so far seem to have been top-notch. I hope that continues and that you get some answers and relief sooner rather than later.

Deep breaths, try to stay calm...easier said than done...
Prayer and hugs headed your way!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 03-01-2013, 07:40 AM   #2
MJo
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Re: Not sure what to think of the info I got today

I have a lung nodule. My oncologist said "I've seen a million of these." Of course I was scared, but so far so good.

My 9th month of Herceptin, after my Muga scan, I walked into the doc's office ready for my infusion and he told me "No more Herceptin for you" My Muga showed a drop in my ejection rate, or whatever it is. Very upsetting, but I'm sure I got enough Herceptin to wipe out that da---d cancer. So far so good, and my heart is fine.

Anxiety causes numbness and tingling in hands and even face and shortness of breath -- I know! I use Xanax, but only when I need it.

Stay well, my dear sister. Treatment is no walk in the park!
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 03-01-2013, 10:46 AM   #3
Becky
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Re: Not sure what to think of the info I got today

I also have a lung nodule and an area of scarring from an pneumonia from years before BC. We are an unfortunate group that we know all the weird things in our bodies from tests and scans. The regular population has these things too but just don't know it because they haven't been poked, prodded and pinched like we have been.

I know you will still worry. I did too but believe it is nothing because it probably is.

Huge hugs from me to you.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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