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Old 01-31-2013, 02:27 PM   #1
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Writer looking for participants to share stories

I am very wary of a "writer" who can't spell - based, not bassed, although I know we're not all the best typists. However, I would advise our members not to respond to you without additional assurance of safety for both identities and medical info. Identity thieves are very clever and unconcerned about those they target. Dianne, you might find a better option to get in touch with potential subjects either through a local oncology office or the American Cancer Society. Those groups could certainly vet you and your project prior to you being allowed to contact bc patients or suvivors. I caution all our forum members NOT to respond to this request. An on-line request for this type of contact only protects the person who is asking for your info and offers no protection to you, the subject.
__________________
Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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Old 01-31-2013, 03:56 PM   #2
DianneClaire
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Join Date: Jan 2013
Posts: 5
Re: Writer looking for participants to share stories

Thank you for your response and contact recommendation. Oops on the typo.

Health and or clinical information does not have a place in this project. Additionally, I would hope that those being interviewed will only relay information that they are comfortable with sharing. The choice to share is voluntary of course, and I would not and have not shared information provided to date. An agreement is provided to interviewees prior to interview. This is done primarily to protect, me as the writer and my intellectual property, and the participant to protect their anonimity.

I respect your concern for the women who may reach out to me, though I am not clear as to what information you think would be provided would be of harm.

If you would like to call me I can be reached at 818 753 3914

-Dianne
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