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Old 12-19-2012, 02:25 PM   #1
Sandra in GA
Senior Member
 
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Re: Prayers requested

Thanks again. I cannot believe all this support! You guys are the greatest. I had a group of friends come over for prayer for me this afternoon. It is such a comfort.

Jacqueline, I sure hope I will lbe #4! That would be the greatest gift ever.

I have also had a couple of pms from Joan who had radiofrequency ablation in '08 for a couple of small lung mets and has no more. She has given me great hope for treatment other than chemo.

I also contacted my vaccine study nurse at Wake Forest, 'lizbeth. After talking with her, I feel much better. She is a doll. She said they do biops on that size nodes and encouraged me to ask for one. She also told me several of her patients are having strange scans that are truning out to be OK. She also told me they do the radio thingy up there. All this has helped calm me down considerably.

Thanks Paula and Kellennea. Prayer warriors make wonderful friends!

Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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Old 12-19-2012, 02:33 PM   #2
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Prayers requested

Don't take it personally but may you NEVER JOIN us the stage 4 sisters here, we do not want you, so you have to stay stage 1 or 2.. no choice.

My prayers are with you, stay as calm as you can, I know difficult.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 12-19-2012, 02:33 PM   #3
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: Prayers requested

Dear Sandra

I am thinking about you and praying too. Have faith - it could very well be nothing at all.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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