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Old 10-15-2012, 11:23 AM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Re: more transition for me

Thanks for all the suggestions and encouragement. I’m trying to get adjusted here. I’ve been here for 2 weeks today. I finally got some furniture – I started out with a card table & folding chairs.

The meals are good; the people are friendly. I don’t qualify for any more physical therapy according to insurance. I do the seated exercises on my own. But I need to do something else to get my legs strength back to standing/walking. I’m still trying to figure out how to get help for that. There is an exercise group here weekdays. It’s really just stretching but I go to that too.

Some frustrating things about being in assisted living. Example: Nurse told me I couldn’t wear compression socks (which I bought at a drug store after the surgeon suggested it) since I didn’t have a doctor’s order on file for it! I promptly got an order faxed. Another nurse said I should have a schedule for when I need to use the bathroom (7, 11, 3. 7, 10, for instance) for their convenience I suppose. How ridiculous – I need to go when I need to go. I asked him if he peed on a schedule. Hard for me have anyone tell me what to do!

Emotionally I’m doing okay but I miss my home, family, pets etc. Thanks, Laurel for asking how I’m getting along.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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