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Old 09-12-2012, 07:08 PM   #1
Jaimieh
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Join Date: Mar 2009
Posts: 126
Re: No more visits to Onc- is this right?

I think you maybe in the market for a new oncologist.

Our standard here in most of the US is too follow the patient for at least 5 years.
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Diag. 12/24/08-
IDC 1.3 er-/pr- HER2+
Grade 3 0/2 lymph nodes
no angiolympathic invasion

Bi-Lat. Mast. 1/8/09
Exchange scheduled for 6/17/09
Lost implants due to unknown reason :(

Hip Flap 1/26/2010 in NOLA :) LOVE EM'

TCH x6 (6 done and I am hoping to never do it again )

Well so much for never...
Local recurrence May 25,2014 is left over breast tissue.
April 2 , 2014 lumpectomy
April 28, 2014- June 9, 2014 start AC x 4
Taxol x12
Perjeta x 6
Herceptin x 18
And 33 rads just for fun. NOT!!!
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Old 09-12-2012, 08:15 PM   #2
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Re: No more visits to Onc- is this right?

My oncologist followed me until I finished Femara, which was basically 5 years after chemo started. My breast surgeon discharged me after 3 years.

I believe this is the standard of care in Ontario, Canada. Because I am in Toronto and had my mastectomy at Princess Margaret Hospital (Canada's major cancer hospital), I was offered an annual follow-up at a Post Breast Cancer Clinic at Women's College Hospital, and I agreed to that. My GP examines me as well at my annual physical.

I don't know what the standard of care is in England, but I see you are ER+ and on Tamoxifen - are you going to be on Tamoxifen and/or Femara (or another AI) for a total of 5 years? If so, I would ask around...

all the best
caya
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1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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