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Re: Anxiously Waiting
Brenda;
I talked to Sonali today she was very helpful, I also heard from our hospital. Barb had an echo done this afternoon this was needed for the FDA approval of comp. use. They are telling us if all goes well we should see the drug sometime next week. Barb has had several echos done in the last two years and has had no problems at all. Hopefully we will get good news next week.
Phil
Thanks for your response I will see what I can do to talk to Kay Hagan I really appreciate all you have done and continue to do for this cause. I wish I could be as proactive as you have been it just seems like I get paralyzed at times and dont know where to turn.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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Hybrid Mode
