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Old 03-27-2012, 11:04 AM   #1
ElaineM
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Wink Re: question

If you don't have the energy to get up and walk you can do exercises in bed. Get some exercises from your therapist for your arms. You can make believe you are peddling a bike while you are laying in bed. You can also do butt crunches, move your feet around and do finger exercises. You can also get some breathing exercises from you therapist. That will help your stamina. Good luck with the PT. Take care.
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Old 03-27-2012, 11:14 AM   #2
AlaskaAngel
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exercises

Elaine,

I have been surprised at just how much difference doing a few exercises daily on a consistent basis in bed does make for me. I didn't get the exercises from elsewhere, and I started out slow with them, but they have been truly helpful.

A.A.
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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Old 03-27-2012, 11:50 AM   #3
StephN
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Re: question

Speaking of exercise in bed - I mainly do stretches. You can bring your knees up to your chest and hug them to give your back and hamstrings a gentle stretch and hold. (The "egg" position.)

Sitting up in bed allows for some upper body and arm stretches as well as neck swivels in each direction. Keeping some flexibility will be key to adding some strengthening.

Just lying there is depressing, but some gentle movement and deep breathing will also be good for getting some oxygen circulating to your brain.

Keep at it - and be faithful to starting and continuing to build from gentle to a little more challenging.

Try to make yourself get out of bed, even if it is to sit in your den or living room. Be sure and eat some protein, even boiled eggs are simple and very nutritious.
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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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