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Old 02-19-2012, 03:02 PM   #1
Mtngrl
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Re: Gerson Therapy: what is your experience with it?

From the link Tanya posted, it looks like Gerson has been pretty thoroughly investigated and debunked.

Remember, "the plural of anecdote is not evidence." Why anyone would make a life-or-death decision, in a field where there's a huge amount of scientific investigation and evidence, on the uncorroborated say-so of one or two strangers, is beyond me.

The liver and kidneys detoxify our bodies. That's their function. As Tanya's article says, it can be very dangerous to succumb to quackery in a misguided attempt to help them do their job. The modern obsession with "toxins" seems kind of Medieval to me. They used to think diseases were caused by marsh gases or emanations of mysterious origins.

The best ways to boost your immune system are rest, stress management, a healthy (but sane) diet, and moderate exercise, like walking. Do all those things, but lay off the coffee enemas.

In 1992 Barbara Bradfield was on her way to Mexico in a last-ditch attempt to treat her Stage IV HER-2 positive cancer when Dr. Slamon called and talked her into participating in the first Herceptin clinical trial. She has been NED ever since then--20 years. (She says she now does anything Dr. Slamon tells her to do.) I know that's an anecdote too, except that a lot of people have followed in her footsteps. There is a mass of data on this.
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4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
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Old 02-19-2012, 08:26 PM   #2
Mandamoo
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Re: Gerson Therapy: what is your experience with it?

Amy - as ever a calm voice of reason - thank you.
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40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis

June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions

Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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Old 02-19-2012, 11:17 PM   #3
StephN
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Wink Re: Gerson Therapy: what is your experience with it?

Barbie wrote:

"as far as chemo - from what I read, it only helps breast cancer in 1.5% of patients not to have a recurrence."

I can't imagine where this could come from. If chemo only helped 1.5% of BC patients not to recur hardly anyone would get chemo!

This figure is FAR from correct. Also, the statistics are so outmoded now, with Herceptin and the other drugs we now have, just don't pay attention to them!

And it is my studied opinion that detoxification will not CURE an aggressive breast cancer that is already out of the box, so to speak. It is on the march - maybe slowly - maybe faster - we are all a little different.

However I believe in detoxing to take the load off your liver and kidneys. It will help you through what ever treatment you decide to take. But one does not need to go to the lengths Paula describes unless you have been a real sloth, and feel a need to make up for lost time. (I am sure Paula was not a sloth, had other agenda.)

Many of the members here have done a lot in cleaning up their diet and general mode of living in order to give themselves a better fighting chance to stay cancer free once the treatment was finished.

You will manage and all will be well for the wedding. There have been other women on this site who had the same situation - precious weddings coming in tandem with breast cancer treatments. You will find the way to take care of your self as well as your family.
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-20-2012, 03:25 PM   #4
ElaineM
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Wink Re: Gerson Therapy: what is your experience with it?

The Gerson Therapy was developed a long time before the newer treatment choices that are available today.
I like what Steph wrote about many of us improving our nutrition and making better choices in our diets. I think that helps alot.
I have improved my diet little by little over the years. I still continue that today. It might take a little more effort than just putting something in a microwave, but I still cook the old fashioned way. 95% of my food is cooked from scratch on a stove or eaten fresh. I am also careful about salt, sugar and fat when I choose foods. I use a blender to make fresh juices after washing and cutting up the ingredients.
As far as detoxing is concerned there are other more pleasant ways to detox than coffee enemas. Healthy homemade vegetable juice blends through a liquid diet for a day or half a day is probably one way.
I think coffee can be dehydrating if it is taken our used in excess. Dehydration is not good for anyone. Coffee is meant to be enjoyed through the mouth and digested through the normal digestive process.
We have alot of resources available to us today. I think it is fine to choose parts of a diet plan that meet our needs and leave the rest alone. I would leave the coffee enemas alone, but I might try a couple of the Gerson recipes that are healthy, well balanced nutritionally and taste good.
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