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Old 08-22-2011, 03:46 PM   #1
KristinSchwick
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Ca27.29#s and NED at stage IV

Stage IV ladies,
For those of you lucky few who have become NED after a stage IV diagnosis, what were your Ca27.29 values before and after you became NED? Thanks!
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Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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Old 07-29-2012, 09:56 AM   #2
dogleg2
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Re: Ca27.29#s and NED at stage IV

Marker was 85...now 22.0 after treatment
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Old 07-29-2012, 12:24 PM   #3
Lauriesh
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Re: Ca27.29#s and NED at stage IV

Mine was 50 when I was diagnosed with liver mets. I have been NED for 17 months and during this time mine fluctuates between 9 and 17.


Laurie
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diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
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Old 07-29-2012, 12:55 PM   #4
Rolepaul
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Re: Ca27.29#s and NED at stage IV

44 now 26.
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Old 08-08-2012, 07:52 PM   #5
Emy
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Re: Ca27.29#s and NED at stage IV

Marker was 87, started tykerb 6 pills a day with herceptin every 3 weeks in march 2012...tumor marker, now in jul is 38 and pet scan is better
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Old 08-17-2012, 06:37 PM   #6
KristinSchwick
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Posts: 231
Re: Ca27.29#s and NED at stage IV

Thanks ladies- I guess I was hoping that there were some out there like me. My tumor marker is in a semi-stable or very gradual rise, sitting right around 120. I read way too much into that damn number, I feel great! I go jogging, I sew, I cook, I have a totally normal life (despite taking ibuprofen due to femara aches and pains)- why am I so obsessed with seeing that number drop. Sometimes I wish he wouldn't tell me what that God-damned number is.
Thanks Ladies.
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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Old 08-17-2012, 09:58 PM   #7
StephN
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Re: Ca27.29#s and NED at stage IV

At liver mets diagnosis CA 27-29 was 57. I began treatment and it went up as far as over 100 before coming back down into normal range.

Since meeting up with NED that number has been between 17 and 23 normally, with an occasional spike into high 20's that goes right back down.

Have you ever had the HER2 serum Elisa checked? Mine goes between 7 and 10.

Can't explain why you have a higher than normal range number.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
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