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Re: After Herceptin
My story is similar to yours. Asymptomatic until I felt the lump, in sentinel lymphs. I asked the same questions and was told no scans unless warranted. I have finished all treatments except continuing on Tamoxifen. The onc said 2weeks of persistent pain should cause you to get a specific check up, otherwise blood work only every 4 months for now! Yes, I agree it seems scary not to confirm NED. I will wait and pray myself through this like everyone else!
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Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011
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