herceptin + tykerb (no xeloda)

msleslie · 02-22-2011, 10:58 AM

I've been on herceptin & tykerb since Aug. 2010. While on chemo (TCH), I had severe diarrhea & stomach cramps which resulted in my doctor suspending the tykerb until chemo was complete. I resumed tykerb 1000mg daily in January and have been doing well. This time around I do not have the diarrhea or stomach aches that occurred while on chemo. I'm scheduled to be on these drugs through end of July 2011.

05-25-2011, 05:55 PM

Wow there's alot to know about taking Tykerb! I just started it a week ago and have had many trips to the bathroom! I go tomorrow for my Herceptin and it seems to be worse when I take them together.I have been on and off Herceptin four years now and occasionally have had bathroom issues with it.
My question is does anyone have a burning sensation in your nose? Also, a bunch of zits appeared overnight along my nose, is it a rash or a zit? They are actually sore too.I never have had acne other thatn the occasional zit, there a probably 5!And they are knid of white.
Thanks for all your posts,It's good to hear I'm not the only one!

05-28-2011, 10:46 PM

There is a soap that might help you with the rash, Cephalon, I found it at the local grocery store, the chemo nurses recommended it. It helped me.

I started Herceptin while still doing chemo in 2008, Tykerb was added a year later. Minimal problems, diahrea on rare occasions and the lovely rash. Started with 1000 mg. once a day, split the dosage into twice a day, 500 mg. each, to help with the rash.

Recently had to stay with family out of town for 4 months, going back and forth between 2 houses. Did not have the cephalon soap and ended up with the rash coming back strong. Back home now and using the soap again and rash is improving again.

Martha