Neratinib Clinical Trial

[ElisabethH]

Hi Ginny - yes, I take my pills after breakfast and my worst case was that I used to have problems if I ate salad without any carbs alongside. I suffered the side-effects quite strongly for the first 2 months and thought at times "is it worth it?" and the answer was always "Yes!" There is a reason we are doing this and we are lucky not to be on the placebo - I tell myself. Now after 6 months, almost 7, I rarely have a problem with cramps. Perhaps I have learnt what I can eat, but also my body must have adapted. Only 5 more months to go!

[Ginny1956]

Today is my last day on trial. I kind of feel like my parachute has been taken away. All follow up tests are clear so I am still cancer free! The only side affects I had was hair loss and evening fatigue. The trial has stopped but participants will be followed for two years at Dr schedule. I am not sure if tests are still covered by trial. I will find out today.

[Ginny1956]

It is not what happens in life that matters it is how you live it.