I am on the Vaccine in Washington would like to chat with anyone on same vaccine

[Jackie07]

Joletta,

Chelee posted this one yesterday (?) for another member:

"I think it's very normal for you to be looking for clinical trials. It's good that you want to stay informed and vigilant. I do agree with Debbie that this would be a great time for a 2nd and even 3rd opinion. (Go outside your network/group.) There are lots of trials...which ones you might fit into I don't know? But there are several good clinical trial sites. One I use you can put all your information in & it will give you results that match your dx. It's called "Breast Cancer Trials.org". Here's the link and see if it turns anything up for you in your area.

https://www.breastcancertrials.org/bct_nation/home.seam?cid=5057

That's interesting that your onc would tell you matter of fact that there are no trials for you. I really highly suggest seeking 2nd opinions...this is a perfect time for that. Also what is your onc's doing to moniter you now that your done with trt? How often does he want to see you now? I'm so happy to see you are doing all the right things! It's good you are researching, learning all you can now. But do remember some really don't recur. We have quite a few on this board alone that haven't & are doing well. Keep us updated."

[joletta]

Thank You Jackie and Steph for the helpful links.
Seattle washington is only offering stage 3b an 4 currently. Washington DC which is closer is offering a few diffrent kinds. You will be randomized 1 0f 3 diffrent ones they are offering. I believe it was a phase 1 trial. these pep tide vaccines seem to be dating back to atleast 10 years ago has any of them made it for a standorized treatment? After getting all the basic treatment does it really seem worth the risk to go through a trial....Is it possible these vaccines could actully bring on more her2 thus making it recur. I will not see my oncologist again untill oct 19..I plan on asking him these questions then. Mabe someone can respond that has been on this trial with good sucess and what vaccine did they get and are they getting close to approving it? does anyone know what the sucess rate is and how much % would it lower the recur rate..i guess that would also depend on what peptide they are on also or mabe since it is still in clinicals these # are not known yet?
seekin info
Thanks
Joletta

[Myra Lynn]

Thanks Didi & everyone else,

First the good news: It looks like there is NED based on the results of the PET/CT scan. I will take a blood test in 2 months to make sure my numbers hold.

I will pursue the leads that all of you provided and see what I can learn about the clinical trials. I'll let you know what I find.