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Old 06-03-2010, 04:04 PM   #1
bejuce
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Re: CNN Report Promising Cure Vaccine

Hi Ellie,

Not sure yet, just know that it'll be open soon and it may be a possibility for me according to my oncologist. I'll keep you all posted once I find out more about it.

Marcia
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 06-03-2010, 05:10 PM   #2
Patb
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Re: CNN Report Promising Cure Vaccine

This is wonderful news but they came on with
this big announcement on our news and said
cure for breast cancer coming up and went on about
it. If people need it now that was very misleading.
It could be years to be available. That it is good
news is true, but not yet.
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patb

Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 06-03-2010, 06:07 PM   #3
Debbie L.
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Re: CNN Report Promising Cure Vaccine

(I'm surprised that anyone is ever able to post as "unregistered". I've tried repeatedly, thinking it would be faster than logging in - and I can NEVER get those dang anti-spam letters correct. Sheesh.)

So, this report is interesting but is nowhere close to being a breakthrough, or the cure, or anything LIKE that. This report is about SIX MICE. There are legions of studies with incredibly impressive results in mice that did not turn out to work, at all, in humans.

Gary Schwitzer has an excellent website where he critiques news reports of medical advances, and he does a great job of reminding us when the media headlines overstep the reality of what is being reported. If you are interested in medical/cancer news, you owe it to yourself to have a basic understanding of what is important vs. what might, maybe, someday, perhaps -- turn out to be important. Here's what he said about FOX news (and others) reporting on this story:

http://www.healthnewsreview.org/blog...st-cancer.html

If you find that interesting, you could also check out a website referenced by Gary, and look especially at the link to their criteria for "what consumers need in stories" (box on top right): http://www.healthnewsreview.org/

It's good that scientists are asking these important questions and keeping us posted about what they're finding. But it's bad that the media can at times be so irresponsible in how they report these things. For inspiration, check out Gary's recent report of how a breast cancer advocate took a southern California NBC affiliate to task for their poor reporting: Sandra Spivey speaks out

Don't get me wrong. I am actually pretty excited about the potential for a prevention vaccine. But it's FAR from ready for prime time.

If you've made it this far, you are interested. Another excellent opportunity for breast cancer advocates to educate themselves (and with that knowledge, to help others) is offered by NBCC. They now have two versions of their Project LEAD program, to educate interested advocates about the science. The program is free (thanks to grants from Avon) and they offer scholarships to help with travel and lodging, if needed: Project LEAD


(Here's what NBCC says about this vaccine report: MICE)

Debbie Laxague


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