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Old 04-08-2010, 07:40 PM   #1
dawn
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Location: Newfoundland, Canada
Posts: 153
Re: Feedback please..
Fantastic Emilie,

All the best,

Dawn
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Dawn

Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.
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Old 04-08-2010, 09:16 PM   #2
Chelee
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Location: Southern, CA
Posts: 2,511
Re: Feedback please..
Emelie, That is fantastic news for just eight wks! I'm up doing the happy dance for you...way to go. Woo hoo. The only thing that I would personally change if it was me--I would want to continue on Herceptin especially since you have responded so well to this combo.

Did your onc give you a reason for wanting to only give you Herceptin for such a short time? Why would he want to stop that? I would not want to wait till something "pops up". Herceptin might be the one drug to keep you NED so you don't have to deal with this again. You could always get a 2nd opinion and see what another onc has to say about this? But that is great news---go out and celebrate. (It has to be your decision...but after you complete the 12 wks of Taxol...I would really think twice about staying on Herceptin.) Thanks for sharing such good news!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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