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Old 02-28-2010, 08:30 PM   #1
vlcarr
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Re: Second Decade - Still NED - Gabrielle

Now I'm really inspired as you were hormone negative too. Like Valerie, my head swims reading all the information about what you should/should not do. I've questioned everything I've ever done in my life that could have caused this bc-none in my family and no other types of cancer either.

But, when I realized I know people who have lived worse lifestyles than mine and never had cancer, I quit the blame game.

I want to do all I can to avoid a recurrence, but I just don't want it to rule my life and stress about everything I eat or don't eat. I am trying to eat healthier......

Thank you so much for your post.
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Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 04-04-2010, 01:18 PM   #2
Gabrielle
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Re: Second Decade - Still NED - Gabrielle

Hi Friends,

Just checking in to say Happy Easter!

Stuffing my face with Easter egg cake and champagne. So much to be grateful for!

Take care,
Gabrielle
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Old 12-26-2010, 04:35 PM   #3
Gabrielle
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Re: Second Decade - Still NED - Gabrielle

Ending 11th year, hello 12th year! NED.

Wishing all of you a blessed and peaceful Christmas season.

Gabrielle
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Old 12-26-2010, 08:07 PM   #4
StephN
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Location: Misty woods of WA State
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Re: Second Decade - Still NED - Gabrielle

Der Gabrielle -
Thanks for logging on and letting us know that all is still going very well for you.

I have also begun my 11th year in the cancer game, and since you are just a little ahead of me I have something to work toward - catch up with Gabrielle!

Have a wonderful year ahead filled with many blessings.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-27-2010, 08:04 AM   #5
Mary L
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Red face Re: Second Decade - Still NED - Gabrielle

Wow!!! Great job. I am so happy for you. Congratulations. Mary l
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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