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Old 01-25-2010, 08:44 AM   #1
whatz
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follow up Mamo...

Well darn. They never checked the other side until last week. Just talked to my surgeons nurse about the mamo result from last week of the remaining right breast and was told they want to have another "compression" view to check something to make sure it's OK. We'll do it tomorrow. I can't feel anything off but then I don't have anything on the other side to compare it to either :-). Think about me. Keep me in your prayers.
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4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 01-25-2010, 09:41 AM   #2
Shobha
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Re: follow up Mamo...

Praying that the Mamo of your right breast is all clear and clean!

hugs,
shobha
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 01-25-2010, 02:33 PM   #3
ammebarb
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Re: follow up Mamo...

Thinking about you and saying prayers that all is well. You will let us know, won't you?

Best wishes.

Barb A.
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Old 01-25-2010, 03:15 PM   #4
schoolteacher
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Re: follow up Mamo...

I will be praying for positive results.

Amelia
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Old 01-25-2010, 05:54 PM   #5
whatz
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Re: follow up Mamo...

Thanks ya'll. Good to have praying buddies :-). Yes, I'll let you know. My appt. is tomorrow @4. Supposedly my nurse put a "stat" on the appt meaning they'll read it faster than normal and I may have my results tomorrow, but then again I may not have them until Wed/Thur. Will post once I know.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 01-25-2010, 06:03 PM   #6
Jackie07
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Re: follow up Mamo...

Hope you get a good result. Don't mean to scare you - but you might want to get someone else to read the film and/or even do a biopsy if there's any questions.

I was always asked to get more views while taking mammagram during my recurrence. Nobody had ever told me that they were seeing 'scar tissues'. After getting 4 full years of 'clean bills', I finally got the original surgeon to pay attention to it and the tumor was finally found - already over 2 cm.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-25-2010 at 06:08 PM..
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Old 01-25-2010, 07:51 PM   #7
whatz
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Re: follow up Mamo...

Thanks. I'll keep that in mind. This time it seems reverse order. Last time I felt a lump myself and they did a control ultra-sound. This time they were doing a routine mamo and are doing a follow-up on it with another mamo. I asked the surgical nurse about the result on this mamo but did not understand the answer other than they needed more pictures to clear things (why not a an ultra-sound I don't know but I'll be sure to ask tomorrow). I'll probably ask for a copy of the reading if I don't understand the answer again.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 01-25-2010, 08:24 PM   #8
Jackie07
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Re: follow up Mamo...

It's good that they are doing ultrasound to double check. My initial bc was discovered by a mammogram and then immediately followed by an ultrasound. Why they did not bother to double check with an ultrasound the following four years was beyond me. (I think everyone was overconfident of the new star breast surgeon...)

I'm glad your doctors are careful about it. Request for an ultrasound if there's even a hint of uncertainty... Though I think in your case there's not that much to worry about since you'd had a mastectomy (Mine in 2003 was a lumpectomy.)
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-29-2010 at 04:01 PM..
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Old 01-25-2010, 08:52 PM   #9
Becky
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Re: follow up Mamo...

You know, sometimes they just don't get a clear picture of an area that's alittle dense. Even those of us who don't have dense breasts have scattered areas of density. Then they squeeze you down and sometimes there is a little "foldover" and they just aren't sure. You'd think they'd look better the first time but truthfully, they do look good and then there is either a second radiologist looking or they have a computer look. All in all, its a good thing but a nerve racking thing.

I can't tell you the number of times I was called back prior to bc (when I was premenopausal and had dense breasts - after ooph - not dense anymore - yea for that so my mammos are easier to read).

I too felt my lump and that is the first mammo I ever had where there was no question, no other films to be run (go figure). So, here's to your dense area that a computer or second human "looker" decided that another picture should be taken.

If I was you (and I had second pix alot), I would just tell the technician that you aren't leaving without the pix being looked at. Use the premise that you don't want to come back again (and that you want to talk to the radiologist reading and get the 2 thumbs up right there). I never wait anywhere for results except in the mammo dressing room. No survivor should have to wait anywhere else.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 01-26-2010, 06:23 PM   #10
whatz
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Re: follow up Mamo...

Hej ya'll,
1. Thank you Lord for a good report
2. Thank you all you prayer warriors for lifting me up

Here's the story. The tech took me in and took the pictures. Per all of your input (thank you Becky) I was persistant in trying to find out how quickly I could get my results and mentioning that I thought this had been ordered "stat" (though I really did not know what the acronym actually stood for ;-) ). The tech told me that the radiologist would read it right there and that she would come tell me. Well, she did, I had to go to an Ultrasound which took approx. 20 (she was very thorough) and then she came and told me that the radiologist wanted to come talk to me. By that time I was pretty much resigning myself that they found a malignancy in the other side as well. The radiologist came just to tell me that he thought all was well, that I had a small cyst he wasn't concerned about but that he thought, given my history, that I should either have an MRI/Mamo combo next time or again Mamo/Ultrasound. He had reviewed the past two years of the Mamos and said there had been no sign of a tumor on the left and that obviously a Mamo alone would not be diagnostic tool enough for my dense breast tissue.

Phew, long paragraph but a good ending to my two hour Mamo appt. :-). Thanks ya'll for being there and letting me voice my worries!
Anja
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 01-26-2010, 08:20 PM   #11
Cannon
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Re: follow up Mamo...

sounds good. I thought an MRI of the other breast was kind of "the done thing" these days...
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Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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Old 01-27-2010, 04:57 AM   #12
whatz
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Re: follow up Mamo...

It wasn't for me. Could be age dependant? (I was 42 when I was diagnosed and had had only mamograms). I can't have the MRI right now due to the expander for the reconstruction (it has a magnetic port which does not work with an MRI). I didn't know that when I opted for reconstruction with the masectomy and neither apparently did either of my Dr's.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 01-29-2010, 02:53 PM   #13
WolverineFan
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Re: follow up Mamo...

I don't think it is age dependent, as I was 39 when I was diagnosed and had an MRI following diagnosis. They did find a lump on my right side as well, but it turned out to be a fibroidenoma, thankfully. So glad to hear that it was good news for you!!
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Hayley
Oklahoma

3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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Old 01-29-2010, 03:59 PM   #14
Jackie07
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Re: follow up Mamo...

Anja,

I'm glad they did a thourough job. Because my mammograms were misread for 4 years straight, I'd always liked to caution others to pay attention to self exams and the feelings one has during the scan. It's always a good idea to get an ultrasound to confirm the result.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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