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Old 08-26-2009, 01:17 AM   #1
hutchibk
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Re: Chrisy's 2000th post!

Ok, other than hiking uphill to and from school in the snow... my other favorite hike is up two opposing hills in Heidelberg, GER. One is the hill that the Heidelberg Schloß is on, and the hike up that one is on city streets and German walking paths. There are three destinations, #1 being the Schloß, #2 is the Molkenkur Hotel, and #3 at the top of the hill (by this time it is a mountain) is the Königstuhl and Alterkohlhof Biergarten.

The mountain across the river is a gravel walking path that takes you first to the Philosphenweg (which Mark Twain wrote about very lovingly) then up the hill to the Heiligenberg (heavenly mountain) where you will find the roman ruins and the Thingestätte.

I love my sweet Heidelberg. Has anyone here ever been?
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 08-26-2009, 08:06 AM   #2
Colleens_Husband
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Re: Chrisy's 2000th post!

Chrisy:

Thanks for posting 2,000 times. You are truly a pillar of the HER2 community. Keep up the excelent work.

I was sweet on a girl in college but she wanted to test me out first. She invited me to her best friend's birthday party and said it would involve a bit of a hike. She told me to bring water, long pants, sun glasses, a warm jacket, and lots of sun screen. She picked me up and we drove for almost two hours before finally arriving at the base of Mt. St. Hellens. This was in 1978 before the mountain exploded. I asked where the party was being held and she points straight up to the top of the mountain. So off we go up the side of the mountain. The hike is pretty difficult but I tried my best to avoid complaining or lagging behind. After about three hours we got to the summit. I was feeling pretty good about myself having trekked to a summit over 10,000 feet tall until I started looking around. There were tables, chairs, a three foot by five foot sheet cake, and a keg of beer. All of this was brought up by various members of the party. I was just amazed! How did people get a 120 pound keg of beer up the side of a mountain with human power alone? When they tapped the keg, the difference in pressure between sea level and a 10,000 foot tall mountain created an enormous beer geyser and emptied half of the keg. Mt. St. Hellens was the the world's largest beer flavored snow cone that day! After the party was over, we had to descend pretty quickly because large rocks would tumble down the mountain and crush people when the mid-day sun would start to melt the ice, so we got pieces of cardboard and slid down the mountain on our butts, steering ourselves with ice axes.

It was a lot of fun but I was sore for almost a full week.
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 08-26-2009, 03:26 PM   #3
Sheila
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Re: Chrisy's 2000th post!

Oh Chrisy dear...couldnt let this commemorative post to you go by without a reply....thank you for all you do for me and all on this site! You are a gem.....now about hikes...I know I have taken a few.....like when I would ask for something and my Dad would say...go take a hike....just dont remember if I did.
Anyway...seems like now that I am off the Taxol required Steroids...I am always hiking my pants up...the pounds are starting to roll off....guess that hikin will have to do for now.....but then it barely compares to someone who pees by the campsite, or hiking trail, or wherever it was!
LOVE ALL YOUR POSTS!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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