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Old 03-03-2009, 11:05 AM   #1
Joy
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Location: Ft. Collins, Colorado
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lots of love
to all of you Eric. I think your continued research and tenacity have potential to help this situation. Not to mention the power of love, which you have exhibited so beautifully for so long. I am directing our Colorado sunshine to you with all of my might.
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 03-03-2009, 12:35 PM   #2
eric
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Thank you all!
I spoke to Caryn's Dr who has agreed to start Caryn on herceptin with a very low dose of Gemzar. This was the first combo that Caryn went on to when first diagnosed stage 4. It brought her 2 years of NED. Apparently the dosage will be low enough that her liver should be ok. I know it's the longest pf shots but I'm happy to have it. My thanks to all of you. Your love and support are amazing.
I'll keep you advised.
Eric
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Old 03-03-2009, 12:52 PM   #3
StephN
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Dear Eric - JOY is what comes into my heart from your post. I am so glad the docs have agreed that all may not be lost.

Are you doing anything else that is therapeutic for the liver such as Milk Thistle and some detox teas? I felt these extra remedies did help my body clear the cancer "debris" from my liver and blood.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 03-03-2009, 01:43 PM   #4
vickie h
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Eric dear! Good news! I'm elated that Caryn is starting on something that worked so well for her. Yea! If she can start taking Milk Thistle tea during the day, it is very beneficial to ridding the liver of toxins and it's very soothing. There are liver cleanser teas at the health food store that are combos of herbs but all have milk thistle in them. I'm still praying for you, Love, Vickie
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Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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Old 03-03-2009, 01:48 PM   #5
Mary Jo
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Dear Eric and Caryn...Hey a "long shot" is a shot, nonetheless. As the saying goes "where there is life, there is Hope" so never, never give up!

Enjoy each day to the fullest - no matter what! None of us knows our tomorrow's. We're all dying. Some just "know" where others don't have a clue. I feel those of us who "know" or who had our mortality smacked in our face are the lucky ones. I really do. We are able to do and say those things we want to say. Often times when death is sudden and totally unexpected there is so much regret.

So all - LIVE YOUR LIFE.......love those around you..............say everything you want to say TODAY as tomorrow might be too late.

God Bless us everyone....

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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