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Old 02-24-2009, 07:03 AM   #1
MJo
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Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
chemo brain/sleep deprivation

I had been worried about cognitive disorders and whether I have chronic chemo brain. Had to go off aromatase inhibitors for one month due to liver reaction, and found myself sleeping soundly through the night after three days off. Began to feel alert and like my old self -- which has its challenges -- but I felt alert, youtful, etc. Am back on Femara. After three days, sleep disorder started again. I think I've been suffering from sleep deprivation for three years. I will have a lot to say to my oncologist. If the pharmas can figure out how to block estrogen and starve our cancer cells, they should be able to formulate the meds so that it doesn't cause chronic insomnia. That has its own health risks. At least I think I know what the problem is now -- chronic sleep deprivation! I wonder how often that's identified as "chemo brain." Thanks for letting me bitch.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 02-27-2009, 08:00 PM   #2
Cannon
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Interesting, MJo, I have been taking sleep meds for a while now - I figured the most important thing for my health is a good night's sleep. It seems like it's often two steps forward, one step back.
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Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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