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Old 12-10-2008, 01:27 PM   #1
juliet
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Join Date: Sep 2005
Location: Ridgewood, NJ.
Posts: 3
Wink IBC Long Term Survivor

I am replying to david lee who wants hopeful stories of IBC. It will be 7 years from my diagnosis in another 2 weeks (December, 2001). I am cancer free! I had 3 chemos, radiation, Herceptin (on a trial back then, as it was only used for metastatic breat cancer). I had spread to the nodes (as I think we all have) and to my rib on the same side. So, I was technically stage 4, but my doctor listed my at 3C or I never would have gotten on the trial.
Yes, there are some of us whose cancer reacts well to the treatments. I was on tamoxifen for 2 years, now on Aromasin (an aromatase inhibitor) for five years (I have one year left). I feel great and am as active as I want to be.
Please feel free to write to me.
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Old 12-10-2008, 01:37 PM   #2
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Thumbs up Juliet

Thanks for posting for David and all of us in general. Although hubby is still hanging in there his journey is tough and rather complicated. We too are in need of hearing inspiration like this. You go girl!!!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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