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Old 09-10-2008, 02:59 AM   #1
madubois63
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Join Date: Feb 2005
Location: LI, NY
Posts: 660
Maria - I just posted about my port experiences (well not all the details) on another thread. My first port flipped the night before my last treatment with AC/Taxol. It came out immediately. Four years later, I relapsed and had another one put in. I used that one for Carboplaten/Taxatere and weekly Herceptin for over a year and a half. My port was very tempermental and I had to have it replaced. Then I got leukemia (from too much chemo). I had to have a catheter placed just below my port. When I got to Roswell Park for my bone marrow transplant, they wanted a new catheter. They pulled the old one and replaced it with "their" catheter. Then I ran a fever for less than two hours (I beleive it was nerves). They decided my port was infected (I still beleive that it wasn't). They told me I could not have the transplant unless they took out the port. So they took it out. Several months later, the catheter was removed (just didn't need it - yeah!!). But then the bc came back and I had my fourth port put it. So far so good. I have been stuck sooooo many times in the one arm I am able to use. I would never hesitate to have a new port in if need be. I think they really save you pain, time and aggrivation. In my opinion, you have over a year of Herceptin to go and I would have a new port put in. I hope they gave you some anti-biotics for the infection??? Also, if you decide to have a new port put in, make sure they do CAT scan guided placement. It may make the difference in how long your port lasts and how it performs. Good luck no matter what decision you make!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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