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Old 07-19-2008, 07:32 PM   #1
KymAustralia
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Join Date: Oct 2006
Posts: 23
Hi everyone,

At Jackie's suggestion I am including my update here.

I was dx'd in Nov '02 and enrolled in the BCIRG 006 trial for using Herceptin as a frontline treatment for early Her2 pos breast cancer.

I have now passed the 5 1/2 year mark and are NED and want you all to know how incredibly grateful I am that I was dx'd when this trial was open and that I was lucky enough to be randomised into an arm that received herceptin as I have no doubt that it is why I am NED today.

Love and hugs to all
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
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Old 07-19-2008, 10:25 PM   #2
Gabrielle
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Join Date: May 2006
Posts: 46
Me Too

Hi, this is Gabrielle.

I'm in my 9th year and I remember how I clung to survivor stories when I was first diagnosed.

My story: Dx at age 44, Stage 3a, 9 infected nodes out of 21, Her2/Neu, infiltating ductal, 5.2 cm stuck to the chest wall, left breast.

Treatment: 4 rounds of adriamycin/cytoxin; 4 rounds of taxotere, 25 hits of radiation, 52 weekly herceptins. Mastectomy; prophylactic mastectomy on the healthy breast 9 mos after diagnosis; prophylactic hysterectomy about 1.5 years after dx.

I have no idea why I survived and friends didn't. This disease is humbling and mysterious and I don't have all the answers. I did, as noted, treat it very aggressively. My kids were 12 and 9 at the time and I was driven by a primal maternal need to survive.

I took 5 months off for chemo but after that, continued to work (I'm a CPA). This year, I started studies for my doctorate.

I hope I don't offend those who have done everything I did and more, but didn't have the luck I've had. It's occurred to me that my posts might make others who have recurred, sad, in that that their stories haven't had the happy ending mine has had. To me, the true warriors are our sisters who have passed; I have had a healthy dose of survivors' guilt from time to time.

But for those who are newly diagnosed, I hope you are energized and hopeful as a result of my personal story. In early 2000, I was told by my doctor that without chemo, I would be dead in 2 years. I took every med offered and here I am , 9 years later, hopeful and making continual plans for the future. My children are turning 21 and 18 this summer. My prayers were answered, to see them raised. It's all gravy from here on out.

Hugs and prayers for all of you,
-Gabrielle
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