T-DM1 - 2nd tumor markers very good

Joy · 05-24-2008, 04:39 PM

So great of you to post this tremendous news Eric. I am serious when I tell you that this made my day. Would you mind refreshing me on Caryn's side effects? Are they improving over time? How was it jumping through the required hoops to begin the trial? I ask as I contemplate this in the future for myself, but I am so truly, very, very happy for you and Caryn. Tell her how excited we are for her.

eric · 05-25-2008, 04:22 AM

Thank you all.

The big drop is in the CEA. This has always seemed to be the more telling of the 2 markers for Caryn. Don't know why as the CA27 (I believe) seem to be more telling for most women with bc but not Caryn.

Joy, she's on the weekly trial and dealing with slight queaziness and fatigue but the toughest side effect has been inflamation. It's causing problems with her eyes and lungs. She's developed bumps around her cornea that are exposing some nerves and making it very difficult for her to keep her eyes in any light. The bigger problem though is the inflamation in her lungs that has her Onc seriously concerned. It's caused her a lot of chest pain and has made it hard for her to breath. A not so bright dr told her that she had the lungs of an 82 year old. Not true as the inflammation is slowing the amount of hear she can exhale at a time. She's now on a steroid that seems to be helping.

Love and light,
Eric