Crossing My Fingers On Mcc- Dm1 Study

Mykentuckyhome · 02-25-2008, 01:49 PM

Thanks for posting that article, finding any positive data makes me feel that I made the right choice. I have to go back to louisville for more tests but im still set for my first transfusion 3-13. I will be on a 21 day cycle. I have been off everything for 12 days, kinda scary. Im going on vaca for 11 days so I hope I can keep my mind off everything. Are all you girls on this study still doing well?

runtolive · 03-05-2008, 01:28 PM

are you still on tract to begin the trastuzumab-dm1 study

run to live

Mykentuckyhome · 03-07-2008, 12:45 PM

hi runtolive, So far im scheduled on the 13th. I am in phoenix right now on vaca-lovin the sun so this was the first time I've logged on for awhile.I was so sorry to read lilly's post. Everything was sent to genetech and they just told me that by the time i got back everything should be set. Im kinda anxious to hear but no news yet. Thanks for thinking about me.

runtolive · 03-24-2008, 03:39 PM

how have u been feeling..

run to live

Mykentuckyhome · 03-25-2008, 08:46 AM

After 3 days of flu like symptoms since my infusion on the 13th everything has been good to go. I had a checkup on the 20th and my blood tests came back normal. I have another blood work appt. on friday and want to see what my liver emzimes are. This drug is known for the liver to spike. In the mean time my study doc said he may have another candidate for the study. I have scans in about 2 - 3 weeks. Thanks for asking, Ill keep posting.

runtolive · 03-25-2008, 01:02 PM

good luck on your next dose ... keep us posted..

run to live