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02-13-2008, 07:32 AM
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#1
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Senior Member
Join Date: Jul 2006
Posts: 869
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Post Mastectomy Shoulder Pain???
Has anyone experienced pain or discomfort in the shoulder muscle since surgery??? I am 3 months out and yesterday, I had so much discomfort it was hard to sleep....Can't figure out if I pulled a muscle on that side or lifted something too heavy. Thanks, Ceesun
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02-13-2008, 10:42 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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sounds like the beginnings of a 'frozen shoulder' to me...there are exercises for that but you should se a doc to confirm!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-13-2008, 11:59 AM
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#3
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Senior Member
Join Date: Oct 2005
Posts: 823
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Ceesun I still to this day almost 3 years out have shoulder pain. I do however do exercises with it by getting moving. I just make sure not to over do it.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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02-13-2008, 12:07 PM
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#4
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Senior Member
Join Date: Jan 2008
Posts: 41
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shoulder pain
Yes, I,ve had a lot of pain in my shoulder, but when I started to swim it got MUCH better!. It is about muscles and movements I think..
__________________
Norwegian
Diagnosed Dec 06, tumor 1.3cm. 1/10 node. PR/ER-, Her2+, DCIS, Mascetomy right side. FEC100 x4, Taxol x4, 25 Radiations, Herceptin finished in June 08. Lymphedema right arm
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02-13-2008, 04:44 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Ceesun, I'm two years out from my MRM so I can't remember the exact time frame...but it wasn't too long afterwards that I had ALOT of pain in that shoulder. It was very difficult to raise my arm upwards or do anything for fear of the pain I would experience if I did so. It came on suddenly. For the first 2 months or so it was fine. I did my exercises and all was fine. Then WHAM...my shoulder felt totally locked up. Thats the only way to explain it. Other then frozen shoulder as others call it.
I brought it up to my onc and as always she just blew it off and said it wasn't from the MRM or the femera I as on at the time. She insisted the answer was to see a orthopedic doctor. I just did NOT want to ADD another doctor to my already LARGE list of doctors/appts. ARGH
I waited it out a bit and continued to "walk my arm up the wall" daily and made sure I MOVED it as much as possible *without* over doing it. And it got back to normal. No pain and has NEVER bothered me again. So you might want to hang in there and give it a bit more time and see if it doesn't get back to normal? Just make sure you do move it daily. Its easy to start trying to protect it by NOT moving it and as we all know the saying "Move it or lose it". But go easy on it and by all means talk to your doctor about it. But I do believe it WILL get better in a short time. 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-13-2008, 06:01 PM
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#6
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hi Ceese
I agree with Suzan that you should get this checked out.
That's what we're supposed to do with any of our aches
and pains that persist.... but it sure sounds like the beginning
of a frozen shoulder. It hurts like heck, especially when trying
to sleep. You might need physio or maybe to start over with
your post mastectomy exercises. Good luck with this.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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02-14-2008, 05:02 PM
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#7
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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Ceesun, I sympathize with you as I can certainly relate. My pain started 2 months after my mastectomies. It is not unusual to suffer from should pain after mastectomies---a few woman even suffer from a torn rotator cuff after mastectomy, especially if you had lymph nodes removed ---the arm and shoulder take quite a bit of abuse during surgery. Along with mastectomy, reconstruction surgery increases the pain too. Radiation was also a big enemy to my shoulder, upper arm, armpit and chest. I went for several months of physical therapy.  Moving the shoulder every day is the key. Stretch until you feel a mild stretch, not pain--- otherwise you can cause damage. If you can tolerate Motrin, it helps with the inflamation. Talk to your doctor about prescribing physical therapy.
The sisters hear certainly offer great advice. 
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.
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02-15-2008, 05:18 AM
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#8
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Ceesun
I developed frozen shoulder about 9 months after my LMRM...physical therapy, steroids injection and antinflammatory drugs did the trick for me...you may need to be evaluated...if it is frozen shoulder, the quicker you get it loosened, the better.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-15-2008, 08:04 AM
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#9
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Senior Member
Join Date: Jul 2006
Posts: 869
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thanks, Gals so much. Going to the oncologist Monday for Herceptin. I will inform them of the problem...how's the weather I am so tired of snow snow snow! Ceesun
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02-15-2008, 09:33 AM
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#10
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Senior Member
Join Date: Jan 2007
Posts: 144
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Frozen shoulder
Ceesun,
I have had frozen shoulder on both of my shoulders at different times, and yours sounds just like how they start. Get to a good orthopedist and get evaulated. Steroid injection, physical therapy and anti-inflammatories are what do the trick for me. Word of warning, the injection is not a pleasant experience, but I could not get past the pain of movement without it.
Good luck and know it does get better.
Emelie
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