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Old 02-13-2008, 12:38 PM   #1
lilyecuadorian
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it is funny ....you Bill remain me my husband with his sence of humor ....dont change ...imagine this site with out your support ...LOL
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Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 02-13-2008, 02:15 PM   #2
tousled1
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Bill,

Other than referring to Tiptoe as a "he" I don't see that you owe anyone an apology. You bring a great sense of humor to this site and I enjoying reading your posts. In the face of this dreadful disease it does a person good to laugh -- also it takes less muscles to smile than it does to frown.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 02-13-2008, 03:10 PM   #3
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Talking

Dear Bill, You are cool with me too. I was only kidding you, knowing you can take (and dish) a joke. Thanks for your sense of humor. Thanks for every giggle and smile you've brought to me, and many others (no doubt).

Aside from calling our Tiptoe a *he* -- I didn't note that you referred to HER as a rodent-like creature. Shame on you. We have all come to love her hunched back and long skinny tail. Along with those piercing little eyes.

After all, Tip, and her kind, have saved many a life! She is a noble, selfless creature and I am personally indebted to her and her ilk big time (being in my 10th yr of Herceptin).

That being said, I hasten to add -- GOOD FOR YOU, Bill. It takes an evolved Spirit to face one's missteps and make amends. I really appreciate your fun way of seeing the world! Humor is one of the best coping mechanisms I know of!! Please keep us laughing out loud. Highly therapeutic! THANK YOU very much...
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 02-13-2008, 03:28 PM   #4
Gerri
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Bill, you are hillarious! I always "get" your jokes and insinuations, so I guess we must have the same warped sense of humor. I make sure I read all of your posts because they always make me smile. Keep on posting, and keep on making us laugh - it is so good for the soul.

P.S. I LOVE the word 'fret', I use it all the time!
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
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Enjoy the little things, for one day you may look
back and realize they were the big things.
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Old 02-13-2008, 04:43 PM   #5
Bill
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Cool

Hi all, Thanks for all of your forgivess and kind words. (I'm nervous, because that little voice in me keeps saying, "you know Bill, maybe the less you say, the better, obviously you already ticked everyone off about Tip-toe", and I sense a Pinkish presence ready to attack at the first possible opportunity) I'm glad you all (I didn't say ya'll) like the posts, laughter is the best medicine, sometimes we all take ourselves and everything around us too seriously. Many, many times my wife, Nicola and I would be waiting in the exam. room for the surgeon or onc., and would be laughing like crazy when they came into the room. The looks on their faces always said, "what in the heck are you two knuckleheads laughing about, you're in a cancer place." Ita, whenever I do put my stuff together, I'll make sure to get a copy to you. Princess Tip-toe, I apologize to you and your kind. Tex, what up, Dog, peace out, Bill
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Old 02-13-2008, 04:58 PM   #6
Marlys
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Go for it! The snow has melted in Boise so spring is coming!
Love & hugs,
Marlys
P.S. I haven't caught Tiptoe or Tex sleeping so I just leave them together.
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