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Old 12-05-2007, 05:56 PM   #14
Joannie
Senior Member
 
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
I am on the TEACH trial since May. It is Tykerb alone. I believe that I have the real thing vs placebo. I have had the following side effects:
  • diarrhea first 3 months
  • mouth sores in first two weeks
  • tingling hands/feet during first month
  • problem with ingrown toenail but not sure if it's related to Tykerb
  • some rapid heart palpitations but only for a couple of weeks. Echo shows normal every 3 months.
  • No noticeable fatigue
  • Light nausea in the beginning
  • Terrible acne/whiteheads for first three months; it has since subsided.
For me it has been quite tolerable. I have little or no trouble with the diarrhea at this time. The acne was pretty bad for quite some time. I went on antibiotics for the ingrown toenail and right after that the acne cleared up. Hasn't come back.

That's what I know for now! Hope it helps!
__________________
Joannie

Diagnosed April 2003
3.3 cm tumor left breast
HER2 positive 3++
ER/PR negative
Masectomy April 2003
4 Rounds of AC - dose dense
4 Rounds of Taxol - dose dense
Removed right breast prophalactically
Full reconstruction with implants/nipples
No Late Herceptin Received
Started Tykerb TEACH Trial in May 2007
Completed Tykerb TEACH Trial in May 2008
5 year NED August 27, 2008!!!
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