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Old 10-23-2007, 04:30 PM   #1
Mary Jo
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The results are in...........................

Well my results are in. They are good BUT not as good as I would have liked. You see, I would have liked "all is perfect" but unfortunately, that is not what I heard. However, I did not hear "you have cancer" so I suppose that is close enough to perfect.

I did hear that that I had 1 pre-malignant lesion - that was the bleeder. Thankfully, it was removed before it turned into a malignancy. I will go in for a another colonoscopy in 3 - 6 months so my doctor can make sure there is no residual polyp tissue left behind.

Two of the polyps were hyperplastic and showed areas of decreased blood flow. I know I don't have this sentence worded correctly and honestly isn't quite sure how to word it. My doctor said she wasn't "real happy with the report" (I think she meant in how it was written or worded) and said that she saw no evidence of decreased blood flow. She said my colon looked good and people with a disease that has decreased blood flow (I think she said disease) have very bad looking colons.

I have a list of questions already started for my face to face visit with her on Monday, the 29th and will definitely feel more "in the know" at that point. The main thing THAT I DO KNOW is that I did not have any cancer. So for that I am thankful. I am also thankful I was pro-active and went in went I felt I should and had this colonoscopy done now and not in 2 years when I am 50.

So it looks like colonoscopy's will be in my near future and then in my yearly future for a while but I guess that'a ok too. Better to know - stay on top of it and catch whatever needs to be caught before it turns into TROUBLE.

I will admit though, I was a little ticked off today. I felt like I was just one big genetic mess AND you know what, I probably am. I also kind of felt like why do I do the things I do? Why do I exercise religiously? Why do I try to eat right? Why do I take the vitamins I do? Why do I care? Honestly, it really seems like what will be will be and it doesn't really matter what I do. I know that sounds like I have a major pity party going on AND I really don't. I just kind of felt that way for a bit but came to my senses and realized that although my body isn't perfect I AM HEALTHY - I AM CANCER FREE - AND I TAKE CARE OF THE SELF I HAVE RIGHT NOW. It can only benefit me - my heart - blood pressure - cholesterol - and overall well being. What will be will be............that is true...................God knows our tomorrow's.................that is true...............but for the now I need to be healthy, which in turn makes me happy, vibrant, energetic and better able to take care of me.

Thanks everyone for you concern and prayers. I appreciate the quick responses, love and support we give to each other when we need it.

Love & God's Peace to all,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-23-2007, 04:51 PM   #2
Margerie
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I am sorry you didn't get the all clear. But I am pretty sure the treatment for pre-cancerous polyps is removal- so all done there! I am proud of you for being proactive and having the colonoscopy in the first place! I have a dear friend that had rectal bleeding for a year before his doctor sent him in for one and by then he had stage 3 colon cancer. He just finished chemo and radiation and is doing well.

I know it is frusturating. I was diagnosed with a thyroid malignancy after bc and felt like a two-time loser!! I mean what the heck???? Anyway, I snapped out of it and realized my bc experience probably prompted me to be very proactive in the thyroid department (my surgeon wanted to watch it). As they say, God works in mysterious ways!!
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Are we there yet?


Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 10-23-2007, 05:58 PM   #3
RhondaH
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Smile Good news Mary Jo...

and no, look at it THIS way, if you DIDN'T do the things you do, things could be a lot worse. Big huggs hon and relax and have a lovely evening.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 10-23-2007, 06:12 PM   #4
Faith in Him
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Mary Jo, good for you for being proactive. I believe it was God's protection over you.
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 10-23-2007, 06:59 PM   #5
tousled1
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Mary Jo,

Soirry you didn't get the exact report you were wishing for but you did get an overall good report. Just make sure you follow-up as directed by the doctor.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-23-2007, 07:38 PM   #6
Becky
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Dear Mary Jo

Who knows why stuff happens? Did you get bc so you would be proactive to prevent colon cancer? If you didn't take care of yourself, would you have had 10 nodes affected versus barely one? And colon cancer at the same time too? Or a heart attack instead - only one being knows the answers to that and he is giving you all the tools to keep yourself safe. And safe you will be. So far so good. Things could always be better but they aren't worse!

Love, Becky
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 10-23-2007, 07:51 PM   #7
caya
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Mary Jo -

The polyp was pre-cancerous - and now it's out - so you will probably have a colonoscopy more often than most people. So you will be watched over more closely, and you will be fine.

I know how you feel - I am not a smoker or a drinker, eat pretty well, exercised, have no family history of BC - I had my mammogram and breast ultrasound in June 2006 - get the all clear (lol) and have the breast reduction in Oct. 2006 and my PS finds the 1.7 cm. tumour. All the docs say this reduction surgery saved my life - they all think that tumour would not have been found in my big dense prenopausal breast for a few years, and then who knows what stage I would have been - probably not stage 1. It was a major pity party here for a few weeks and then once all my scans were coming in clear, and my onc. and breast surgeon gave me the plan of attack, I started to feel better and prepare for the fight.

So this is just another battle for you Mary Jo, but you are winning the battles and the war!

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 10-23-2007, 07:57 PM   #8
Mary Jo
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Hi Becky,

You're right!!! As usual!!!! Things happen for a reason - I believe that, beyond a shadow of a doubt. I was just caught off guard I guess. When I had the abdominal CT scan a few weeks ago, that I was afraid of. I thought, "oh know...........the liver will be seen - what will they see?" The colonoscopy I didn't give a second thought too - for sure my colon was going to look great. Of course it will. I'm 47 years old - in good health - it will be perfect. So, when this "stuff" was found I was a bit shocked and then got ticked off. Sadly, I vented here and showed my ignorance in my silly thinking.

I feel better now and know that YES, it was a good thing I went in. It's a good thing I will be monitored closely and it is a GOOD THING I TAKE CARE OF MYSELF.

Thanks for your positive spirit when I needed it most AND thank you to the rest of you for your uplifting words as well.

Love, Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-23-2007, 08:13 PM   #9
Soccermom2007
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Marejo,
Because of a family history of colon ca (brother) I had my first 5 years ago...they found 3 polyps, two years later 4 more polyps one of which was precancerous, and last year (post BC treatment) I had NOTHING...NADA, absolutely no polyps! I was thrilled! The worst part is the darn prep and the best part is that when you wake up they have already plucked those "bad boys" out and one can get on with their life. That is of course unless something more serious is found in pathology. I just happen to think that colonoscopies are wonderful lifesaving tools...so please, think of it that way and hopefully the next time you will be clear as a whistle!

Big understanding hugs,marcia
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Old 10-23-2007, 08:41 PM   #10
Bev
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medium news. You're an experienced fighter now, so you'll be able to keep track of those polyps more efficiently than a newbie.

I feel the same way about getting all this at a relatively young age and decent behavior. It makes me want to start smoking cigars and playing poker 20 years from now. Want to join me? I'm too chicken to be bad now, but a lot of environmental influences do seem somewhat random here and now.

Maybe the purpose is for all of us to bump up our colon-cys. Hope all stays NED. Bev
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Old 10-23-2007, 10:10 PM   #11
Jean
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Mary Jo,
Always seeing the glass half full, I would say that you are one smart
cutie patootie! Continue to stay one step ahead and keep on having
your checkups.

Glad that all is going well for you.
Hugs,
jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 10-24-2007, 09:48 AM   #12
dhealey
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Marejo, It really is good news as they got before it turned into something bad. My onc keeps suggest colonoscopy to me and I keep avoiding it. Never had one and I am 53. Don't want to deal with that awful prep. You think they could come up with a better way to look at the colon.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 10-24-2007, 12:27 PM   #13
Leslie's sister
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still good news

Mary Jo
Ditto to what everyone else says. You are smart to stay on top of everything, smart to take care of yourself, smart to leave no stone unturned. It can be rough at times, esp when it seems we do "everything right" and still don't have totally perfect results. The good news is that it is NOT cancer and you are now going to be vigilant about the colon. (As we all should be!) Keep on being agressive and thank you for being the light that you have always been!
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 10-24-2007, 03:16 PM   #14
KRISS
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I am so thankful that you got the news you did. Yes more follow ups, but hey, no cancer! Yeah You! I agree with everyone here especially Becky. Only He knows why you are following this particular path. And if you didn't do all those things you do, you would probably be kicking yourself now thinking you did this to yourself. Many blessings to you this day, hugs Kriss
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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Old 10-24-2007, 06:37 PM   #15
Mary Jo
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Once again............thanks everyone. As always, your words encouraged, inspired and kicked me in the butt where needed.

Love you,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-25-2007, 04:39 AM   #16
IRENE FROM TAMPA
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Thumbs up

Hey we all need a little nudge in the butt once in a while but it seems to me Mary Jo that you are doing exactly what is needed to keep yourself strong and healthy.

I always tell everyone that if it wasn't for this damn (excuse me) "BIG C" I would be healthy as a horse. I really think that has been a big factor in helping get through this.

So you keep up the good work Mary Jo and we all need to have a pity party once in a while . It is good to get it all out and this is the best place in town to do just that so keep it coming if you feel another need. We are all here for you.

Congrats on the good news...
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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