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Old 09-04-2007, 10:19 PM   #1
BonnieR
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Patricia, what is Kitchen Table Wisdom about? You make it sound intriging....I guess i could Google it. But I had chemo today and feel like a slug. Tomorrow I will be wired though, so maybe can research it then....
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-04-2007, 10:49 PM   #2
Patricia
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Hi Bonnie,


Kitchen Table Wisdom is a compilation of healing stories, told by the author who is a Dr. who has suffered from Crohn's Disease for 40 years and changed her path mid-career from practicing internal medicine to practicing psychology for patients with life threatening illnesses (including cancer) as well as with Physicians. The stories she tells are her own and her patient's including those that were ill and the physicians she also treated. This book touched me in a way no book has done in many years. I have since shared it with everyone that I know who has been dx with cancer as well as my own surgeon. I highly recommend it. I hope your chemo went well today and that you have a healing week.

Hugs,
Patricia

Here is the statement on the back of the book:

"Despite the awesome powers of technology, many of us still do not live very well, " says Dr. Rachel Remen. We may need to listen to one another's stories again." Dr. Remen, whose unique perspective on healing comes from her background as a physician, a professor of medicine, a therapist, and a long-term survivor of chronic illness, invites us to listen from the soul. This remarkable collection of true stories draws on the concept of "kitchen table wisdom" - the human tradition of shared experience that shows us life in all its power and mystery and reminds us that the things we cannot measure may be the things that ultimately sustain and enrich our lives. Kitchen Table Wisdom addreses all the spiritual issues; suffering, meaning, love, faith and miracles in the languuage of absolute authority of our own life experience.

Rachel Naomi Remen, MD., is one of the earliest pioneers in the mind/body health field, and was one of the first to develop a psychological approach to people with life threatening illnesses and educate their physcians about hteir needs. She is cofounder and medical director of the Commonweal Cancer Help Progrram, which was featured on Bill Moyer's PBS special Healing and the Mind, and is a Clinical Professor at teh University of California San Francisco School of Medicine.
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age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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Old 09-05-2007, 04:40 PM   #3
chrisy
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Also "My grandfathers blessings"

This is another book by Rachel Naomi Remen - sometimes you can get it in a set with Kitchen Table wisdom. Both are really good, inspirational, and definitely (for me anyway) hanky material in a good way.
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-08-2007, 01:54 PM   #4
doh2pa
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Thank you all for some great recommendations. Here's my contributions:

If you like biographies, I liked Jane Fonda's (My Life So Far) and Queen Noors (can't remember the name, sorry). Margaret George does great historical fiction and has done a book a Mary Queen of Scots, Cleopatra and Henry VIII - they are all fascinating and long!

Fiction - Travels with My Donkey, Tim Moore (hysterical), The Time Travelers Wife (fascinating) and Snow Flower and the Secret Fan by Lisa See (fascinating asian culture).

Enjoy!!
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Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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Old 10-28-2007, 06:53 AM   #5
Mgarr
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Smile Good Books Thanks

Just wanted to thank you all for your books selection. I love to read and to date have enjoyed The Alchemist, Devil in the White City & Infidel. Keep those suggestions coming it will get me through the long Michigan winter.

Mary
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Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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Old 10-28-2007, 11:48 AM   #6
Val Pfeiffer
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A couple others...light reading

I just finished two books--you don't need to read the first one before the second, but it helps. Norris Church Mailer wrote them (Norman Mailer's wife). Both are fast reads, not the literary classic sort of books, but definitely enjoyable reads. The first is Windchill Summer and the second one is Cheap Diamonds.

Val
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Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *

6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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