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Old 08-29-2007, 03:57 PM   #1
BonnieR
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Susie Q, I don't know how helpful this will be, if at all. But I am in Palm Springs about 2 hours or less drive from SD. The Cancer Center here referred me to the PT Dept of Desert Regional Med Center that has a lymphedema component. The therapist I had was very thorough and thoughtful. It is just a little room in the hospital rehab division but I felt well treated. She did extensive testing and measuring. She put me through a series of lymphedema exercises and after a few visits I was okay to do them at home myself. I had very early lymphedema symptoms and some post surgical issues. It was more preventative. But it was a good experience. If you want more info let me know.....
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-29-2007, 04:12 PM   #2
Joe
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Try this site:

http://www.lymphnet.org/

Regards
Joe
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Old 08-29-2007, 08:02 PM   #3
Gerri
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Location: Southern California
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Thanks Joe!

I sent the link to a dear friend of mine with metastatic b/c. She has severe lymphedema and her insurance company is refusing to pay for her compression sleeve. There is a sample letter of appeal on the website that she is going to send to her insurance company. She has been struggling with writing yet another letter and was thrilled to find one perfect for her situation.

Thanks again for your help and for this website - truly a blessing to so many.

Best regards,
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
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Enjoy the little things, for one day you may look
back and realize they were the big things.
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