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Old 06-18-2007, 09:53 PM   #1
weezie1053
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Location: Bedford, Virginia
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Question Double Ports

I am still trying to find my way around this website. I joined in Nov, but my learning curve was too small to comprehend my own illness. I am back, and I feel like I am learning so much about my own disease due to members sharing experiences.

I am curious as to how many of you might have a double port. Not knowing too much of anything when I started my journey w/ BC, the hospital installed a double port. After finishing 16 rounds of chemo and numerous herceptin treatments, I have not come across another BC patient with a double port. In fact, I am on my second port. There was a problem with the first one not working properly, and in Feb (5 months after starting chemo), they removed the first one and installed another double port. Some of the nurses in the Fusion area have told me that it probably was whatever the university wanted that day due to it is a teaching hospital.

Just curious if anybody else out there has a double and if there is really justification for the larger port. I had a mastectomy; however, I feel like my port is more noticeable because it is "out there" whereas the reconstructed boob is concealed behind a cup holder (bra).

Okay, I need some website help. What's the difference between a post and a new thread?
__________________
  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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Old 06-19-2007, 08:28 AM   #2
Vi Schorpp
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Hi Weezie: The difference between a post and a new thread: Your message is a new thread; my reply to you is a post.

Sorry I can't offer anything on a double port as mine was a single port. Take care.
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Old 06-19-2007, 10:12 AM   #3
tousled1
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Weezie,

My son had leukemia and had a double port. The reason was so that they could give him his chemo in one and do all blood draws, transfusions in the other. I had a single port that they use for blood draws and for my infusions. Just had my port removed a few weeks ago.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 06-19-2007, 01:39 PM   #4
Gerri
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getting port out too

Hi Kate,

I am getting my port at the end of the month and have been given the choice of having a local or sedation. My port is in a different place than most (so my nurses complain). The port is "hidden" in the inner portion of my left breast (in the cleavage) and the line runs about 6 inches straight up. I want to go with the easy way. Did you have a local or go under sedation for the procedure? Believe it or not, the port placement hurt more than my lumpectomy.

Thanks!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
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Old 06-19-2007, 02:38 PM   #5
Barbara H.
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Hi,
My port is very small and is a double port.
Barbara H.
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Old 06-19-2007, 07:10 PM   #6
tousled1
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Gerri,

I had a local when I had the port put in -- more like twilight. My daughter went with me because I don't think I would have been able to drive. When I had my port removed, I just had some novacain and that was it. Nothing to it.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 06-19-2007, 07:27 PM   #7
Gerri
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Thanks Kate. I'm still mulling it over but this helps.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
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Old 06-29-2007, 11:11 PM   #8
weezie1053
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Location: Bedford, Virginia
Posts: 134
I guess I was just one of the guinea pigs of the day and the hospital installed a double port. My first port was less conspicious. I had a masectomy with reconstruction, but due to the location of the port, I feel more conscious of the port than the reconstructed breast. I leave for vacation on Sunday, and I feel like I have to hide it. The wire in my jugglar vein was also more noticeable on the second installation. Thanks for the feedback.

Louise
__________________
  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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