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06-14-2007, 10:58 PM
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#1
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Here... for now
Angels-
Just a quick note to say "Hi There" and let you know that those of us in a support role are still here, maybe quiet, but here. I have not posted in months (BAD MEL BAD), but I do keep tabs - and shed tears. My heart aches for Sandy - we have lost another warrior - but I know my Lisa met up with her and they are FULL of energy, love and light - all focused on you incredible ladies
One of the reasons for my lack of activity has been caring for Lisa's mom. A more than full-time job plus caring for an 86 year-old mother-in-law (moving between Assisted Living, Hospital and Nursing Care and back) has been quite a handful.
Unfortunately (for me) it looks like Frances is soon to join Lisa and Buddy. But hey - the family reunion will be awesome - Buddy 10/06 - Lisa 12/06 - Frances 6/07 - just me left out... Heaven is looking better and better.
I do not have the means to convey Lisa's love and light to each of you, and I am no wordsmith - but know in your heart of hearts just how special EACH AND EVERY ONE of you are to each other - and to those of use that lurk more than post.
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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06-15-2007, 12:22 AM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Mel, Its funny you popped in to say hi. I have been thinking about you & wondered if everything was ok? I am sorry to hear about your Mother-in-law...that must be very stressful on top of keeping you running all the time. (No time to come up for air.) You sure have your plate full. But with that said, its nice to hear from you and know your still out there. 
Here's hoping things slow down and improve for you soon. I will be keeping you and your Mother-in-law in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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06-15-2007, 02:53 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Mel...
it seems that today is a reunion of old friends. I'm typing this between my tears, I still think of Lisa dearly (she, Linda and Sandy hold a special place in my heart) and I carry around a card she sent me about 1 1/2-2 years ago (I just can't throw it away). We've missed you and take care of yourself while taking care of Lisa's mom. While "here" is a great place because of my son, I agree with you about heaven and I have hugs for many. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-15-2007, 04:02 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Mel
I was thinking about you too - just like Chelee. I was wondering what's going on with the bike ride and concert. Keep us updated because you never know who will pop in!
Hug to you
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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06-15-2007, 04:16 AM
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#5
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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So nice to hear from you again Mel. What a spectacular, caring person you are. God Bless.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-15-2007, 04:54 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Wonderful to hear from you Mel. I think of you often. I hope that you are taking some time for yourself too! Maybe a beer out with the guys? Please take care of yourself Mel.
You deserve nothing but the best. Much love to you. -kim
__________________
dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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06-15-2007, 05:20 AM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mel
Funny thing, like everyone else you have been on my mine...must be because it truly is flip flop weather here now!
Take care of yourself...you have endured many losses this year.....but they will be together as a family above watching over all of us. May this bring you peace through all of this.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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06-15-2007, 05:51 AM
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#8
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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God bless you Mel, for caring for Linda's mom and doing the "and then some" for so very many. I'm praying strength and sweetness for you this month of so much sadness. I do agree the party is awesome in heaven. Love and light back to you, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-15-2007, 06:07 AM
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#9
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Senior Member
Join Date: Oct 2005
Posts: 215
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love and light
It was so nice to hear from you Mel , you carry a heavy load, but you can do it. The good Lord is helping you. Blessings to you,Jeanette
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06-15-2007, 08:09 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Thank you for checking in, Mel. It is a great comfort to know that while Lisa and all the other wonderful souls are watching from above, you and others like you are 'lurking' here on earth!!! Peace to you!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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06-15-2007, 09:11 AM
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#11
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Senior Member
Join Date: Jan 2007
Posts: 144
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Hi Mel,
I too was thinking of you as my move date to Denver gets closer. We are planning to arrive on the 28th or 29th of June so I am sending a request for beautiful Colo. weather.
I am also sending you some of my new found energy now that I have finished radiation so you can better take care of yourself.
Take care and keep posting so we can know how great you are doing.
Emelie
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06-15-2007, 08:23 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Mel,
So good to hear from you. I know you carry a heavy load; be sure to take care of Mel. We are all here for you.
Keeping you in my prayers,
________
Colorado marijuana dispensaries
Last edited by sassy; 08-22-2011 at 09:18 AM..
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06-15-2007, 09:11 PM
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#13
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Thanks for checking in Mel and keeping us up to date. I am sorry about your mother in law. How fortunate she is to have you. Lisa will forever be in our hearts along with all the sisters we have lost and those who are still here. How kind of you to stay in touch. I feel the love and the light through you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-17-2007, 12:37 PM
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#14
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Lisa
Thank you, Mel for checking in. I think of you often and pray for some peace in your life. We will all be joining Lisa and Sandy one day, some of us sooner than later. I. too. think heaven looks better and better, because there are so many beautiful souls there waiting for us, no pain, no suffering...just light and love and laughter. Sending you my love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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