Tykerb --- diarrhea!

[michele u]

Rupali,

my onc. basically lets me do what i want!! He knows i research alot and I'm a nurse. I told him long ago that I will do anything and everything!! He did tell me NO to 2 years of Herceptin though. I'm glad he did. I think since Tykerb is oral and there are some trials starting now on early tykerb, he knows that someday Tykerb will be like Tamoxifen. My insurance company first denied it. Then he wrote a letter of necissity and then they paid it. What really helped me was the Tykerbcares program. You can find it on the internet. They helped and did most of the work. They are the ones that got me in touch with the Patient Acess Network Foundation that paid for my copay of 900 dollars a month

[Rupali]

Hi Michele,

Thanks for your reply. If I may ask is it possible that I can have a phone consult with your oncologist and maybe that way I could maybe be able to get my community oncologist to talk to him and she can then prepare a similar leter for my insurance company. I have CIGNA HMO. I know I am asking for too much but I am in a desperate situation to get this drug and somehow have the insurance pay for it.
If you dont mind then you can give me the name of your oncologist in a private message or send it in an email to my husband at saurabhkapoor27@hotmail.com
AS you are a nurse so you must be knowing your oncologist pretty well, is it possible thta I can have a secnd opinion from him and as my case is so similar to your case so maybe I can have him as my oncolgist for major treatment advices.

Thanks for you r help. I really appreciate it.
Regards,
Rupali