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Old 05-17-2007, 05:04 PM   #1
cassie
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Join Date: Apr 2007
Location: Beautiful Valdez, Alaska for 40 years
Posts: 7
Red face drugs

Joy
I get tired just reading all the things that you have to do!!! How do you have the energy? I'm so glad you finally got the meds,but the PRICE, that's scary.
I sure hope that you find more financial help. This is really a shame that your energy has to go to worrying about money when other more important things (like keeping a positive attitude) are needed. I know this is going to work out as is the meds. It's going to WORK!

So sorry to hear about your dog. They are so much a part of the family. At 13 years he/she has had a long and happy life knowing what a great master(mistress) it has!

Lots of hugs and prayers going your way. cassie
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Old 05-17-2007, 06:49 PM   #2
lilyecuadorian
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Join Date: Mar 2007
Location: CHARLOTTE NC USA Home town (ECUADOR) South America
Posts: 542
I'm enyoing so much the way how you write I can't do it even in spanish ....(my first language) and your treatment is going to work I got a lot of good feeling about that , is going to work ....just wait ....you will see
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 05-17-2007, 07:53 PM   #3
Carolyns
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Join Date: Jun 2006
Location: South Florida
Posts: 477
Joy,

You remain in my thoughts and prayers. You have been through and continue to go through so much.

Love, Hope and Peace,

Carolyn
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Old 05-18-2007, 05:23 AM   #4
Odette
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Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Vote yes, take it today

Joy,

I have never been able to do as many things as you are doing even before cancer! Most of the time you probably enjoy being so capable, but now together with fighting for your Tykerb it is too much!

You will get through these days but then you must expand all your energy just on yourself to get well. To kick the butt of those nasty liver mets!

In this line of thought I would take the Tykerb as soon as it arrives (only 1 hour after and 1 hour before a meal) also no grapefruit juice.
You are the most important this time!

I just startet Tykerb 5 days ago, I do not have any debilitating side effects, I trust you will not either!
Should you have some side effects, you might just say to the people around you: I have to lay down a little, I started a new chemo. They will understand.

Happy Birthday to your daughter Joy, enjoy it is your special time too!

Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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