Phantom breast pain after mastectomy?
As many of you know I had a prophylactic simple mastectomy on 4-15-07. I wanted it gone for two reasons. One the fear of bc returning in that side, & the dreaded mammo's. Plus I had pain in that breast & axilla for 6 months. Four masses were found but were suppose to be consistent with lymph nodes. (Still concerned me due to on-going pain & my bc history.)
But I've noticed since my mastectomy on 4-15-07, I still have the axilla pain which has actually increased. (But surgery may of distrubed that...so I will give it some more time.) But I WAS having breast pain in the 2 o'clock area, areola & nipple. Now the breast is gone & I have the exact same pain in the areola & nipple? I heard & read about phantom breast pain...but this is weird. I did *not* experience this last year with my MRM. Does this every go away...or only time will tell? Has anyone else here had phantom breast pain?
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.