neuropthy

Jean · 08-07-2006, 06:14 AM

I need some advise and help!

Late last night I began to feel some pins and needles feelings in my feet
and now this morning it continues. Also am beginning to feel some of this on the tips of my fingers......

I completed 11 days ago my 4th chemo trt of TCH......have not called the onc
and will see him on Thur. while I have my 12 hercetpin trt.....

How long does this last?
Is there anything that I can take to ease it up?
Is this permanent?

Also - this is rather strange but Now I am becomming very concerned, has anyone experienced the following:

A thin cord like vein under my arm has appeared. At first I thought it was just a muscle strain from swimming. Then in doing some research I discovered something called Mondor Disease.....it says it is self-limited and benign, its significance lies in the clinican's recognition from primary, "recurrent" or "metastatic carcinoma, or an abscess of the breast.

I have put an e mail out to my surgeon to set up an appt. but I was hoping until I see the dr. someone on the site may have some information on this.

Thanks All,
Jean

tousled1 · 08-07-2006, 07:04 AM

Jean,

I developed neuropathy while on Taxatore and I still have it. My oncologist put me on Lyrica and it seems to help some. As for the arm - I have what they call "cording" in my right arm and it's due to having 26 lymph nodes removed. I would definitely want to get in to see your oncologist.

RhondaH · 08-07-2006, 08:40 AM

I TOO have and do experience neuropathy. It has gotten somewhat better (when it was REALLY bad, I hated handling money, as my fingers couldn't grip it well). I'm not sure what you can do to prevent or eliminate, but it does/should get better as you get further away from treatment. Take care and God bless.

Rhonda

Jean · 08-07-2006, 02:49 PM

Thanks Kate and Rhonda,

Sent an e mail out to my surgeon and he said not to worry it is not a recurrance
(the cording) under the arm...to put warm compress on the vein and should
calm down in a few weeks.....ohhhhh that sounds soooo gooood.

Therefore back to the neuropthy - do we know anymore about this is it perminate nerve damage?

Thanks again,
Jean

chrisy · 08-07-2006, 03:03 PM

Hi Jean,

Yep, you sound right on schedule with the neuropathy. I started having tingling fingers and toes about that time on TCH. My onc gave me a list of supplements to take to reduce this - I'll try an locate it but off the top of my head, it was B-complex, plus B-6 and B-12, folic acid, Alpha-lipoic-acid, L-glutamine and some others. My neuropathy never got much worse than what I initially noticed. It took a long time (maybe 6-12 months?) to get pretty much back to normal, I still have a little numbness in my toes but I have to really think about it to notice it1. So I think it is reversible if you don't let it get too bad.

Jean · 08-07-2006, 07:15 PM

Chrisy,
I apprecaite your sharing the information on the vit. - started the B complex
early evening and will pick up the rest tomorrow....if there are any more you can think of let me know.....

Thank you all - it is so wonderful to have you all out there!

Warmly,
Jean