ER-/PR- HER2 staging poll - HER2 Support Group Forums

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ER-/PR- HER2 staging poll

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View Poll Results: ER-/PR- HER2 staging poll
I am stage 0 or 1 ER-/PR- HER2+ and originally diagnosed as stage 1 with negative lymph nodes		37	18.69%
I am stage 0 or 1 ER-/PR- HER2+ and originally diagnosed as stage 1 with positive lymph nodes		3	1.52%
I am stage 2 or 3 ER-/PR- HER2+ and originally diagnosed as stage 2 or 3 with negative lymph nodes		28	14.14%
I am stage 2 or 3 ER-/PR- HER2+ and originally diagnosed as stage 2 or 3 with positive lymph nodes		70	35.35%
I am stage 4 ER-/PR- HER2+ and was originally diagnosed as stage 4		27	13.64%
I am now stage 2 or 3 ER-/PR- HER2+ and was originally diagnosed at a lower stage		7	3.54%
I am now stage 4 ER-/PR- HER2+ and was originally diagnosed at a lower stage		27	13.64%
My cancer metastasized less than two years from original diagnosis		14	7.07%
My cancer metastasized two years to four years from original diagnosis		6	3.03%
My cancer metastasized in greater than four years from original diagnosis		7	3.54%
Multiple Choice Poll. Voters: 198. You may not vote on this poll

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02-25-2015, 04:41 PM	#1
broccoli Senior Member Join Date: Dec 2013 Location: Toronto, Canada Posts: 26	Re: ER-/PR- HER2 staging poll Hi Debbie, was the recurrence detected by a mammogram or by another type of scan? Just curious. Thanks! Laura __________________ 2012-Feb-29 D-Day: IDC ER-/PR- HER2+++ Grade 3, Stage 3 - several biopsy proven positive nodes 2012-Mar - July: Neoadjuvant FEC-D + Herceptin (6 rounds) 2012-Apr: DVT in arm that received chemo - put on LMW Heparin 2012-Apr: Port installed 2012-Sep-7: Lumpectomy + ALND - pCR with residual DCIS 2012-Oct: Switched from LMW Heparin to Warfarin 2012-Oct-Nov: 30 days of rads 2013-Jan: Entered Adjuvant Metformin trial (Metformin or placebo for 5 years) 2013-Jan: Switched from Warfarin to Xarelto 2013-Mar: First signs of lymphedema 2013-May-16: Last Herceptin (17 doses in total) 2013-Jun: Port removed and anticoagulants stopped 2014-Mar: Lymphedema worsened and became unresponsive to treatment 2015-Apr: Started PENTOCLO protocol to attempt to improve radiation fibrosis

02-25-2015, 05:26 PM	#2
Dakini52 Senior Member Join Date: Jan 2010 Location: Edmonds, WA Posts: 202	Re: ER-/PR- HER2 staging poll The recurrence was diagnosed during a CT scan which I was having every 6 months. I had no symptoms and my bloodwork was normal. __________________ Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. []In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. []12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta. Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in. Debbie K

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