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Old 04-06-2014, 11:45 AM   #1
debsing
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Posts: 43
Re: plan finally in place

Herceptin/perjeta was my very first treatment a year and a half ago and had progression once the taxotere was stopped.. unfortunately.. I'm beginning to wonder how her2+ I really am
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Stage IV August 2012- mets to liver, bones, omentum, and skin. Started herceptin/perjeta/taxotere
May 2013- started herceptin/ perjeta/navelbine
August/September 2013- started kadcyla
March 2014- ended kadcyla, had gamma knife to three spots in brain
58 yrs old, post menopausal at dx
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Old 04-06-2014, 12:46 PM   #2
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Re: plan finally in place

Well Amy said what I was thinking. And Carol Ann too.

I meditate every day, since the day I was dx in 1995. I use guided imagery and breathing techniques. I go to my special place (a "find" a friend brought me to in the Catskill mountains that was truly heavenly. Full of elation, serenity, beauty, a haven midst the deep woods. I remember it vividly and it was over 50 yrs ago!). Slowly taking in life-affirming air through my nostrils, holding onto to it for a bit, and then gently blowing it out through my pursed lips, kissing all that is negative goodbye. Letting it go.

Letting the anger and blame go!!!! Opening my heart as I breathe in to being filled with the abundant supply of Universal Love. Living with that Love. Offering it to everyone! Along with compassion, kindness, tenderness, generosity of Spirit and yes, forgiveness..........

It is so immensely healing to your body and your Spirit.

With Love and Light,
Andi

Oh yes, I agree a signature would help us all help you better! And a pic would be grand, so I can see you as I pray for you.
You can e me if you'd like. Click Andrea Barnett Budin and it will offer you that choice. OOOOOO
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-07-2014, 03:13 AM   #3
Jackie07
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Re: plan finally in place

Hi,

Glad you are able to utter: "I'm so pissed that..." A good sign/technique ...

Sending you good vibes.
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http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
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1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
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