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Old 09-04-2010, 03:45 PM   #1
StillHere
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Join Date: Mar 2007
Location: Greendale, WI just outside Milwaukee
Posts: 211
Re: Joe passed on this evening

Dear Christine, Danielle & Deborah
Your husband/father was such a forward thinker and inspiration to everyone. I did have the privledge to speak with him over the phone on a couple of occations my first years as a member of this site. Although this great web site was a gift to Christine, in reality it was a gift to us all. Thanks to Joe and Christine, I was able to connect with my Her2 family when my family at home was snug in their beds. I will be sending a donation to this site in memory of your wonderful husband/father. I am so very sorry for your heartbreaking loss. Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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Old 09-06-2010, 12:59 PM   #2
TSund
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Join Date: May 2007
Location: DFW area (TX)
Posts: 431
Re: Joe passed on this evening

blessings to a truly wonderful angel. My sympathy to Christine and all of her family. Thank-you for sharing so much with all of us.
Terri
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Terri, spouse of Ruth, Dallas/Ft. Worth area
Ruth dx 05/01/07 (age 50) Filipino
multifocal, several tumors .5 -2.5 cm, large area
Breast MRI showed 2 enlarged nodes, not palpable
100%ER+, 95%PR+, HER2+++
6x pre-surgery TCH chemo finished 9/15/7 Dramatic tumor shrinkage
1 year Herceptin till 6/08
MRM 10/11/07, SNB: 0/4 nodes + Path: tumors reduced to only a few "scattered cells"
now 50% ER+, PR- ???
Rads finished 1/16/08
Added Tamoxifen,
Finished Herceptin 05/08
NOW is the time to appreciate life to the fullest.
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Old 09-07-2010, 05:21 PM   #3
mts
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Join Date: Sep 2005
Location: Central Florida
Posts: 503
Re: Joe passed on this evening

I have not logged on for quite a while and was just so saddened to hear of Joe's passing. I only spoke to him once about 4 years ago and he was most helpful to me. If not for this website I would never have had the kind of unbiased information provided to me nor the support.

I always have considered that cancer has a good side in that it allows us to reconcile, redirect, and reaffirm our lives in positive ways. I know Joe was already doing that way back when this website was created.

My warmest thoughts go to Christine and family. My eternal thanks to Joe. He was awesome!

Warmly,

Maria
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--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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